Association for
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    • 10@10 Mindful Mondays 27th April 2020

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    • 2016 Information Day 11th January 2016

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    • 2017 Annual Patient Information Day 16th June 2017

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    • 2018 AMEND Patient Information Day 27th April 2017

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    • 2018 Annual Patient Information Day 1st February 2018

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    • 2019 AMEND Patient Information Day – book now! 8th January 2019

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    • 2020 Research Award Round Open 7th November 2019

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    • 2021 Annual Information Day Update 11th January 2021

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    • 2021 Annual Patient Information Day Success! 29th November 2021

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    • 2021 Project to Educate GPs 5th November 2020

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    • 2022 Annual Patient Information Day 21st March 2022

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    • 2024 Annual Patient Information Day 19th March 2024

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    • 2025 Information Day Speakers Confirmed! 30th April 2025

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    • 2025 Peer Support Meetings Confirmed 13th January 2025

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    • AMEND 2024 AGM Rescheduled 5th July 2024

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    • AMEND and BTF Pen Article for SfE’s 75th Anniversary Magazine 29th November 2021

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    • AMEND Annual Patient Information Day Success 25th May 2023

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    • AMEND at World MEN 2023 16th May 2023

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    • AMEND Attends INCA Summit 4th October 2022

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    • AMEND Attends INCA Summit 27th September 2023

      INCA Summit 2023 Group Photo
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    • AMEND Attends SICEM 2024 in Seoul 24th April 2024

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    • AMEND Attends the 2021 British Endocrine Society Meeting (BES 2021) 29th November 2021

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    • AMEND awarded Big Lottery Fund grant 9th February 2018

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    • AMEND Awards 2 Research Grants for 2022 31st October 2022

      Daniel Tennant
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    • AMEND CEO Elected to European Society Committee Co-Chair Position 8th August 2022

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    • AMEND CEO Writes Article for Endocrine Nurses 8th March 2023

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    • AMEND Co-Authors Article on MEN2 4th November 2024

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    • AMEND Face masks now available to buy 21st September 2020

      AMEND’s new, superior face masks are now available to buy from our online shop. Reusable, non-medical face coverings, customised with the AMEND Netty logo 3-layer soft-feel woven cotton Reusable & washable Compliant with latest UK guidelines Available in adult and children’s sizes.

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    • AMEND Film wins Bronze People’s Choice Award 23rd March 2022

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    • AMEND Grants 4 Research Awards 15th July 2019

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    • AMEND Invited to Host Session at ThyCa 2022 Survivor’s Conference 24th August 2022

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    • AMEND Involved in Novel SIMBA Training Event 24th April 2024

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    • AMEND Launches MEN1 Patient Experience Films on NET Cancer Day 29th November 2021

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    • AMEND Launches MEN2 Patient Experience Films During Thyroid Cancer Month 29th November 2021

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    • AMEND Launches Regional Support Groups 6th August 2018

      Each Regional Volunteer will be responsible for organising Regional Support Group meetings in their region.  They will facilitate these groups, which will provide peer support, but also sign-posting to AMEND’s information resources and other support services.

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    • AMEND Research Fund Open to Applications 8th January 2019

      Introduction to Men
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    • AMEND Trustee Calls for End to Price Gouging 12th August 2021

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    • AMEND Trustee Wins Award 21st March 2022

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    • AMEND’s 2021 Research Grants Awarded 29th November 2021

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    • AMEND’s European Work 14th November 2018

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    • Annual Information To be Held in October 24th February 2021

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    • Annual Patient Information Day 2020 Cancelled 22nd March 2020

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    • Annual Patient Information Day Booking Open 29th January 2025

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    • April Newsletter Sent to Members 5th April 2018

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    • Become a Peer Support Volunteer 9th February 2023

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    • Big Give 2023 Christmas Campaign 21st August 2023

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    • Big Give Christmas Campaign Raises over £5,000! 6th December 2022

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    • Big Give Christmas Challenge 16th June 2016

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    • Big Give Christmas Challenge 2017 4th December 2017

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    • Big Give Christmas Charity Challenge 21st November 2022

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    • Big Plans for SDH Syndrome Community 30th January 2020

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    • Black & Gold Ball 2018 13th June 2018

      You can now buy your tickets to AMEND’s 15th Birthday party, the 2018 Black & Gold Ball, which will be held on Saturday 22nd September 2018, at the Amba Charing Cross Hotel in Central London.  Tickets include a 3-course meal, 1/2 bottle of wine, welcome drink and dancing ’til late.  Save £40 when you book a […]

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    • Cancer52 Patient Survey on COVID-19 15th June 2020

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    • Celebrity Patron Supports MEN2B and Me Film 6th March 2020

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    • Charity Film Award Nomination for Ethan 25th October 2019

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    • Charity Film Awards Double Awards for AMEND! 21st April 2020

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    • Charity Film Awards Night! 21st April 2020

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    • Christmas Shopping in Aid of AMEND 4th November 2024

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    • Come climb with us 1st February 2018

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    • Come climb with us! 3 Peaks Challenge 20th November 2017

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    • Community Advisory Groups Now Recruiting 1st July 2021

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    • Community Advisory Groups Still Recruiting 19th January 2022

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    • Coronovirus (COVID-19) Resources 6th March 2020

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    • Cost of Living Crisis Resources 17th November 2022

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    • COVID-19 and MEN Research Study 22nd March 2020

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    • COVID-19 Study Results Updated 8th June 2020

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    • COVID-19 Survey Results Updated 11th January 2021

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    • Crisis Card for Phaeo/Para Patients 15th July 2019

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    • Current UK Drug Shortages 27th March 2025

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    • Current Unmet Needs in Multiple Endocrine Neoplasia Syndromes 14th June 2023

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    • Desert Trek to Petra 24th February 2021

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    • Exclusive Tees for Rare Disease Day 27th January 2021

      AMEND Rare Tee
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    • February 4th is World Cancer Day 30th January 2020

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    • Film Stars Needed (aged 14-25)! 30th October 2020

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    • Films Now Available to View 16th June 2016

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    • First Three Speakers for 2023 Event Confirmed! 13th September 2022

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    • Free Patient Event for Sporadic MTC 19th March 2018

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    • Fundraising Event Registration Now Live! 13th January 2025

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    • Genomics England New-born Screening 4th November 2024

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    • Get Fit Goals! 6th January 2016

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    • Get Ready for Thyroid Cancer Awareness Month! 27th July 2021

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    • Got a Story to Tell? 26th January 2023

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    • Great North/South Runs Places Available for 2022 1st December 2021

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    • Happy Birthday AMEND! 1st February 2018

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    • Hardship Fund for Members 7th November 2019

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    • Help us Develop GP Resources 13th January 2023

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    • Impact of COVID-19 on Emotional Health in MEN Syndromes 18th November 2020

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    • Introducing SDH Syndromes Films’ Launch 16th May 2020

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    • Join Our Smartphone App Focus Groups! 13th January 2023

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    • Kids’ Cartoon Reaches Charity Film Awards Finals! 2nd March 2023

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    • Last Chance to Vote for Claudia’s Film in the Charity Film Awards 19th January 2022

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    • Let’s Talk About NETs! 26th October 2016

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    • Levothyroxine: New prescribing advice for Health Professionals 21st May 2021

         

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    • Liam’s Virtual London Marathon Success 5th October 2020

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    • Looking for volunteers aged 13-21 18th June 2018

      Aged 13-21 and have MEN1, MEN2A or MEN2B?  Free on the weekend of 6/7th October 2018?  Like Rollercoasters?  Come and volunteer for our Project Rollercoaster workshop on being a young adult with MEN to help us develop resources for this age-group.  Free day at the theme park is the reward!

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    • Lottery Grant for AMEND! 4th October 2022

      AMEND CEO Jo Grey with National Lottery Cheque
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    • Member To Run London Marathon in Memory of his Mum 17th August 2021

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    • MEN1 and pNET Survey Launched 29th March 2018

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    • MEN2B & Me films launched 11th May 2019

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    • MEN2B and Me: Ethan (his own words) Film Reaches Award Finals 27th March 2020

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    • MEN2B and Me: Ethan (his own words) Film Shortlisted for Award 15th January 2020

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    • Merchandise Sale! 18th January 2023

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    • National Lottery Grant for Counselling Service 2nd November 2020

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    • NET Cancer Day Coffee Club 9th October 2018

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    • NETS in RETS 27th September 2023

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    • NETs in RETS Webinar with Prof Karim Meeran 9th November 2023

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    • New Celebrity Patron for AMEND! 4th May 2016

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    • New Counsellor Joins the Support Team 30th January 2020

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    • New Dates for Members’ Meetings 28th April 2020

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    • New Fundraising Events 22nd July 2020

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    • New Group for PPGL Syndromes Launched 1st September 2020

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    • New Medical Advisory Team Member 7th December 2016

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    • New Phaeochromocytoma Booklet 16th October 2019

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    • New Publication on Family Planning 24th January 2017

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    • New Publication on MEN3 (MEN2B) 4th October 2022

      Ethan leg brace
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    • New resource for partners and carers 10th May 2019

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    • New UK Steroid Emergency Card 19th March 2020

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    • New video on MEN1 with Prof Thakker 29th May 2021

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    • New Webcast! Guidelines 23rd January 2025

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    • New Webcast! Parathyroid Surgery 27th March 2025

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    • New! Young Adults’ Survey 5th January 2024

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    • NICE Approves Cabozantinib for Metastatic MTC 19th February 2018

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    • Notice of 2018 AGM 16th April 2018

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    • Patient Survey on Research Priorities 25th February 2019

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    • Peer Support Meetings for 2023 6th January 2023

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    • Pet & Pamper Raffle Winners Announced! 31st August 2021

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    • Pet & Pamper Raffle! 24th February 2021

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    • Petra Plodders Complete 100km Trek! 28th October 2022

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    • Phaeo Para Awareness Week 13th July 2020

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    • Play the Unity Lottery and Support AMEND! 26th February 2018

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    • Please Help With This Important Survey 1st March 2018

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    • Rare Disease Day 2021 24th February 2021

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    • Rare Disease Day Twitter Chat 15th February 2019

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    • Rareminds Podcast on Preimplantation Genetic Testing 8th January 2025

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    • Record-breaking Day 11th May 2016

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    • Regional Meetings for 2019 22nd January 2019

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    • Research Opportunities for Clinicians (and some MEN2B patients) 23rd November 2022

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    • Selpercatinib – Can you Help? 27th March 2025

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    • Selpercatinib Approved for Metastatic MTC 29th November 2021

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    • Special Event for Scottish Members 5th July 2024

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    • Spring Regional Meet-ups 30th January 2020

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    • Survey for MEN Patients 4th November 2024

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    • Survey of Musculoskeletal Problems in MEN2B 19th May 2021

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    • Survey on Impact of COVID-19 on Mental Health 16th October 2020

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    • Survey on Pregnancy in MEN Patients 5th November 2024

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    • Treasurer Vacancy 29th April 2024

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    • Two New Trustees Join the AMEND Board 30th January 2020

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    • UK MEN1 & PNET Research Registry Operational 31st July 2018

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    • UK Rare Disease Framework 24th February 2021

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    • UK Research Registry Now Collecting Data 29th March 2018

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    • Updated Advice for the Extremely Vulnerable 22nd June 2020

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    • Updated book on MEN1 now available 5th November 2019

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    • Virtual Support Meeting Dates Confirmed 27th January 2021

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    • Volunteer for a new research project 29th September 2023

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    • Vote for Claudia’s Film in the Charity Film Awards 2nd December 2021

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    • Voting open again for Charity Film Awards 13th February 2020

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    • We are Moving! 6th June 2022

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    • Webinar for Sporadic MTC Patients 3rd April 2025

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    • World Hormone Day 2025 15th April 2025

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    • Yorkshire 3 Peaks Team Smashes Challenge! 3rd July 2018

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    • 🎄 Could you Pledge a Star for our Christmas Tree? 🎄 5th August 2022

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