AMEND news in Month: February 2019

• Patient Survey on Research Priorities

  

  AMEND and the NET Patient Foundation launch new joint survey to gather patient opinions on research priorities.  Results will help to formulate a joint research strategy.

  Click here for more information

• Rare Disease Day Twitter Chat

  

  AMEND's first live Twitter Chat will be held on Rare Disease Day - Thursday 28th February, 2019.

  Click here for more information on how to join in!

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