Research Fund Application Deadline Extended
AMEND's Research Award applications deadline has been moved from April 30 to August 31, 2020. We know that most new research projects have now been postponed due to the current coronavirus pandemic, so hope that this new deadline will be more achievable.
MEN2B and Me: Ethan (his own words) Film Reaches Award Finals
We were thrilled to learn that our patient experience film about MEN2B has reached the finals of the 2020 Charity Film Awards. MEN2B and Me: Ethan (his own words), is a short film that focuses on one of our younger members with MEN2B, Ethan Holliman.
COVID-19 and MEN Research
AMEND has developed a research survey for those with MEN disorders who have had COVID-19, in collaboration with our Medical Advisory Team and Trustees. Patients, family members and clinicians involving in caring for those with MEN1, 2A & 2B, can complete the survey by clicking the link.
Annual Patient Information Day 2020 Cancelled
We are sorry to report that our 2020 Annual Patient Information Day that had been scheduled for Saturday 16th May in central London, has now been cancelled. The next Information Day will be held in 2021 and details will be posted about this on our website later this year. Thank you for your understanding.
New UK Steroid Emergency Card
The UK's Society for Endocrinology have released a downloadable version of their steroid emergency card early due to the coronavirus pandemic. Anyone on replacement steroids (adrenal insufficient) should print out, complete and keep a card with you in case of emergencies.
We're keeping in touch with our Medical Advisory Team to bring you guidance and recommendations on avoiding the current coronavirus pandemic. Click to read the full article with links and check back regularly for updates. Latest update: 26/03/2020
Celebrity Patron Supports MEN2B and Me Film
Actor and AMEND Celebrity Patron, Shaun Williamson, famous as Barry in Eastenders and as himself in Extras, wants your vote for our film about Ethan and his condition, #MEN2B, and incurable cancer, #MTC.
Voting open again for Charity Film Awards
In January, after a public vote, our film about Ethan and his diagnosis of MEN2B was shortlisted in the 2020 Charity Film Awards. The second phase of voting is now open and we need your support once again.
Spring Regional Meet-ups
There are 6 free Regional Meet-ups organised for this Spring: Yorkshire and the Southwest (14th March), Leicestershire (22nd March), East Anglia and Scotland (28th March), Northeast (29th March). Come along for a cuppa and a chat with your Regional Volunteer. Refreshments and information resources are available at each meeting.
February 4th is World Cancer Day
The theme for World Cancer Day on February 4th is 'I am, and I will'. Keep an eye out on our social media channels as we raise awareness of the cancers within our community, from adrenocortical cancer, to medullary thyroid cancer and pancreatic neuroendocrine tumours. There will be messages directly from some of our members and plenty to learn throughout the day.
Big Plans for SDH Syndrome Community
After consultation with our membership, AMEND is developing a new identity and resources for the SDH syndrome community in the UK. SDH Support UK will be run by AMEND but will have its own website, information resources, patient experience films and social media forums.
Two New Trustees Join the AMEND Board
We are pleased to introduce our two new Trustees who join the AMEND Board this year. Dr John Ayuk, Consultant Endocrinologist, and Mrs Miriam Asia, RN, Clinical Nurse Specialist, both work at the University Hospital Birmingham and bring many years of expertise to their new roles. We look forward to working with them over the next 3 years!
New Counsellor Joins the Support Team
This year, we welcome David Phipps to the AMEND Counselling Service Team. David takes on the role of Associate Counsellor and will be available to our members when our Lead Counsellor, Kym Winter, is unavailable, and for those members who may perhaps rather talk with a man. David's particular interests relate to how individuals can find ways of living full and meaningful lives after having experienced, or when still experiencing, troubling psychological or physical health difficulties.
MEN2B and Me: Ethan (his own words) Film Shortlisted for Award
We were excited to learn today (15th January 2020) that one of our patient experience films about MEN2B has been shortlisted for a 2020 Charity Film Award. MEN2B and Me: Ethan (his own words), is a short film that focuses on one of our younger members with MEN2B, Ethan Holliman.