Association for
Multiple Endocrine
Neoplasia Disorders

Rare Disease Day Twitter Chat

AMEND's first live Twitter Chat will be held on Rare Disease Day - Thursday 28th February, 2019.

Click here for more information on how to join in!

Regional Meetings for 2019

Our Regional Meetings project enters its second year this year.  Keep an eye out on our website and on Facebook for existing scheduled dates and future events as they are added.  These small patient meetings welcome anyone with MEN or SDH syndromes, adrenocortical cancer (ACC) or sporadic medullary thyroid cancer (MTC).  Free and informal with refreshments provided - booking essential.

AMEND Research Fund Open to Applications

AMEND's 2019 Research Fund is open for applications.  From a total fund of £30,000, £20,000 will be available specifically for projects looking at MEN1-related research (in memory of Nick Fayers), and £10,000 will be available as usual for projects into any of the conditions associated with AMEND (MEN1, MEN2A, MEN2B, SDHx, MTC and ACC – and the tumours associated with these conditions).

2019 AMEND Patient Information Day – book now!

Our popular Annual Patient Information Day will be held in Sheffield, S. Yorkshire, on Saturday 11th May, 2019.  This is a wonderful opportunity to meet other patients and carers, but also to learn about the disease that affects you and your family, and other useful topics.  Expert medical professionals ensure that the information you receive is accurate.  We welcome all those affected by multiple endocrine neoplasia (MEN) disorders, phaeochromocytoma and paraganglioma syndromes (SDHx), adrenocortical cancer (ACC) and sporadic (non-hereditary) medullary thyroid cancer (MTC).  Tickets are free so book now before we run out!