Patient Information Books
We have published guides on all the MEN disorders as well as other conditions and aspects of the conditions. Our aim is to help newly diagnosed patients gain a greater understanding of their condition and to provide reference tools for patients of all ages throughout their life.
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Adrenocortical Cancer
Updated for 2020!
View Booklet
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MEN1 Book (UK)
NEW VERSION FOR 2019!
View Booklet
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Adrenal Gland Surgery
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MEN2a Book (UK)
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Employment & Returning to Work
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MEN2b Book (UK)
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Dealing with Diagnosis
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Medullary Thyroid Cancer
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Familial Isolated Pituitary Adenoma
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phaeochromocytomas
New for 2019
View Booklet
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Inherited Phaeochromocytoma & Paraganglioma Syndromes
New for 2020! New group and website developed for PPGL Syndromes also available.
View Booklet
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familial medullary thyroid cancer
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starting a family
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Talking to Children and Young People about MEN
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living with uncertainty
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the whipple procedure
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Working with your Medical Team
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Looking After Yourself
New in 2019. Leaflet for partners and carers written by AMEND Lead Counsellor, Kym Winter
View Booklet
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AMEND Clinic Leaflet
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ACC Clinic Leaflet
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Phaeo Para Syndromes Clinic Leaflet
NEWSLETTERS
Our newsletters are now produced twice a year in June and December. Registered members receive both the latest edition of our main newsletter and a monthly e-newsletter. You can view some of our past main newsletter editions below. If you would like to receive our newsletters, please register by clicking here.
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December Newsletter 2018
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August Newsletter 2018
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April Newsletter 2018
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December Newsletter 2017
OTHER RESOURCES
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My Story Template
Want to write your own story but don't know where to start? Use our handy template for inspiration! Scan and send by email or pop it in the post.
Click here to download the Word template