Other Ways We Can Help You
AMEND believes that patients and healthcare professions should work together to improve care for patients and spread awareness of these rare conditions to aid earlier diagnosis. We have a number of ways we do this. Importantly, AMEND is supported in its work by an expert Medical Advisory Team, and includes healthcare professionals on its Trustee Board. We are enormously grateful that these individuals give of their limited time freely to help ensure that AMEND’s information resources and support services are up-to-date and fit for purpose.
Explore some ways that we can work together below:
Medical Conference Participation
AMEND has presented at a wide range of national and international medical conferences since its inception in 2002, including:
- Association for Surgeons of Great Britain & Ireland
- World MEN meetings
- British Endocrine Society meeting
- Endocrine Nurse Update meeting
- MD Anderson MEN Patient Information Event
Patient experience talks can be particularly impactful, but other issues and insights can be addressed as required. Contact AMEND to discuss your ideas.
AMEND currently supplies just one volunteer to be available at 2 hospitals in London at their Specialised Endocrinology or MEN Outpatient Clinics. The volunteer is part of the clinic team, and is available to patients to introduce them to AMEND and to share our information resources, as well as just to be a listening ear.
During 2018, we are running Project Connect, which will recruit and train up to 10 more volunteers throughout England, some of whom may be available to work with other hospital endocrinology teams around the country. If you are interested in this Project for your clinic, please contact Jo Grey.
AMEND awards an annual award at the British Endocrine Society meeting to the best submitted abstract in the Endocrine Neoplasia category.
Medical Training Input
AMEND staff and patients are often involved in talking or lecturing to medical students. Contact AMEND for further information.
“Thanks so much for your lecture for the MSc students on Friday. The students were bowled over – I wasn’t quite prepared for how meaningful they were going to find it; thank you so much”
“Our visitor was exceptionally eloquent and knowledgeable about their condition. They made us all feel so comfortable asking questions, and I felt so engaged with her through her talk and discussion about her condition”
AMEND staff and volunteers provide the patient voice (PPV) in a range of settings, including:
- NHS England Specialised Endocrinology Clinical Reference Group
- European Reference Networks (ERNs) for Rare Adult Cancers (EURACAN), and Endocrinology (ENDO ERN)
- individual and collaborative research projects.