We are grateful to all the patients, medical professionals and film crew who gave their time to produce our Patient Experience Films. We hope you find them interesting and inspiring.
MEN1 - My Story (Subtitled)
Emma, Kevin and Steph share their stories of diagnosis, treatment, and life with their MEN1 syndromes. Huge thanks to Emma, Kevin and Steph for sharing their experiences with us!
The following videos were produced for AMEND by Red Goat Productions thanks to grants from Ipsen and Advanced Accelerator Applications UK & Ireland Ltd. They were launched on NET Cancer Day, 10th November 2021.
MEN1 - My Story: Emma
MEN1 - My Story: Kevin
MEN1 - My Story: Steph
Living with MEN2A (Subtitled)
Come and meet Liz, Laura and Mandi and hear their experiences of diagnosis and treatment in MEN2A, as well as how they feel that their disease may affect their futures. Huge thanks to Liz, Laura and Mandi for participating in this project!
The following videos were produced for AMEND by Red Goat Productions thanks to a grant from Ipsen, and launched in September 2021.
Living with MEN2A - Diagnosis
Living with MEN2A - Treatment
Living with MEN2A - Future
MEN2B and Me
These films about MEN2B (MEN3) were produced in 2019 to raise awareness of the condition, to aid earlier diagnosis and to support other patients. The films are available with subtitles on our YouTube channel for those who are hard of hearing. With thanks to our stars, Red Goat Productions, as well as to the Society for Endocrinology for helping to fund these films.
MEN2B and Me: Asher (diagnosed at 6 weeks)
MEN2B and Me: Ethan (diagnosed aged 12)
MEN2B and Me: Kristina (diagnosed aged 2)
Transcript download: MEN2B and Me – Asher
Transcript download: MEN2B and Me – Ethan
Transcript download: MEN2B and Me – Kristina
CARTOONS FOR KIDS
MEN1 Kid's Cartoon
MEN2A and MEN2B Kid's Cartoon
|AMEND MEN1 Animation Transcript||AMEND MEN2 Animation Transcript|
MEN1 Patient Experience
MEN2 and MEN3 Combined Patient Experience
|AMEND TRANSCRIPT MEN1||AMEND TRANSCRIPT MEN2|
Things Not to Say to Someone with MEN Part I
Things Not to Say to Someone with MEN Part II
AMEND Annual Patient Information Days
2018 Patient Information Day
Click here to view videos on: Dealing with Diagnosis and Uncertainty; Communicating with your GP; Working with your MDT; Getting Involved in Research and Preparing for Surgery.
2017 Patient Information Day
Click here to view videos on: Overview of MEN and SDH Disorders, Introduction to Adrenocortical Cancer (ACC), Sharing Difficult News with Friends and Family; Understanding Research
2016 Patient Information Day
Click here to view videos on: Starting a Family, Care of the Pregnant MEN Patient, Overview of MEN1 and MEN2, Steroids Made Easy, MEN Pancreatic NETs
2015 Patient Information Day
Click here to view videos on: Liver Surgery in MEN1 Patient Experience, Metastatic MTC in MEN2a and MEN2b, Coping Strategies for MEN Patients, Research presentations
2013 Patient Information Day
Click here to view videos on: The Highs and Lows of Calcium, Surgery in Children with MEN, Role of the Genetics Department, Current Management of MEN1, Fastest Adrenalectomy in the West
Please note: no videos were made at the 2014 Information Day.
You will also find a range of other videos on our YouTube Channel (AMEND3)
During 2018/19 we will be developing some short videos specifically for young people on transition and living with MEN, so be sure to subscribe to our channel to see them as soon as they drop!