We are often contacted by researchers who are looking for patients with certain conditions to take part in different types of research projects, from surveys to clinical trials. Please check this page regularly to see what opportunities might be available for you to get involved in and help further the search for better treatments and for cures.
- The UK Research Registry for Multiple Endocrine Neoplasia Type 1 (MEN1) and Pancreatic Neuroendocrine Tumour (PNET) - UK patients only
- UK clinic study by Imperial London into the different types of adrenal steroid replacement therapies (hydrocortisone vs prednisolone)
MD Anderson (USA) GEN Registry for Multiple Endocrine Neoplasia Type II - international
Contact Chardria Trotter (Registry Coordinator) on 713-792-7642 or 713-745-1462
- American Thyroid Association Thyroid Cancer Survey (Feb 2018) - international (only available in English)