Between 2012 and 2024 AMEND provided £191,000 in research funding to 20 researchers, covering all of the diseases we support. This was deemed to be feasible only when AMEND has sufficient surplus funds. Unfortunately, in order to secure financial security for the future of the charity, the Trustee Board suspended the AMEND Research Award Programme in 2024.
Nevertheless, AMEND remains involved in providing the patient voice to researchers in the UK and Europe. Please contact the CEO for more information on how they and our communities can help or check out our Community Advisory Group project on this website.
You can read about all the research projects we funded from 2012-2024 below.
Specific Grants
The Elliot Dallen Award for ACC Research formed part of the annual grants programme for 2022-2024. The Elliot Dallen Trust was set up by the family and friends of the late Elliot Dallen, who had ACC. The Elliot Dallen Trust granted AMEND a fund of £10,000 per year for three years specifically for research into adrenocortical cancer. We thank them for trusting us with this important responsibility.
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AMEND Research Award Recipients (2012-2024)
.- 2024 Award: 1 project awarded funding for 2024 (ACC – thanks to the Elliot Dallen Charitable Trust). Click here to view the project.
- 2023 Award: 1 project awarded funding for 2023 (ACC – thanks to the Elliot Dallen Charitable Trust). Click here to view the project.
- 2022 Awards: 2 projects have been awarded funding for 2022 (Phaeo/Para, ACC). Click here to view the projects
- 2021 Awards: 3 projects received funding in 2021 (MEN1, Phaeo/Para, ACC). Click here to view the projects.
- 2020 Awards: 2 projects received funding in 2020 (MEN1, Phaeo/Para). Click here to view the project outlines.
- 2019 Awards: 4 projects received funding in 2019 (MEN1, SDH, Pheo/Para, ACC) totalling £28,482.47. Click here to view the projects.
- 2015 Awards: 4 projects received funding in 2015, including 3 MTC projects from a special fund for 2015. Click here to view the projects which total £50,000.
- 2014 Award: Improved genetic diagnosis of MEN1 by next generation sequencing of the entire MEN1 gene. Ms Martina Owens, BSc, MA, Clinical Scientist, The Royal Devon & Exeter Molecular Genetics Centre. £9,910
- 2013 Award: Occurrence of microRNAs in the plasma of MEN1 patients and their feasibility as biomarkers. Ms Kate Lines, BSc (Hons), PhD, Postdoctoral Research Assistant (Endocrinology), OCDEM, Oxford. £9,994
- 2012 Award: Prophylactic Thyroidectomy in Children with MEN2 in the UK. Mr Francesco Prete, MD, PhD, Senior Clinical Fellow, Department of Endocrine Surgery, University College and Great Ormond Street Hospitals. £5,050