AMEND news in 2020
Research Fund Application Deadline Extended
AMEND's Research Award applications deadline has been moved from April 30 to August 31, 2020. We know that most new research projects have now been postponed due to the current coronavirus pandemic, so hope that this new deadline will be more achievable.
MEN2B and Me: Ethan (his own words) Film Reaches Award Finals
We were thrilled to learn that our patient experience film about MEN2B has reached the finals of the 2020 Charity Film Awards. MEN2B and Me: Ethan (his own words), is a short film that focuses on one of our younger members with MEN2B, Ethan Holliman.
COVID-19 and MEN Research Study
In collaboration with our Medical Advisory Team and Trustees, AMEND has developed a research survey for those in the UK with MEN disorders who have had COVID-19 (diagnosed via e.g. blood test or NHS111 online without a blood test). Patients, family members and health professionals involving in caring for those with MEN1, 2A & 2B, can complete the survey.
Annual Patient Information Day 2020 Cancelled
We are sorry to report that our 2020 Annual Patient Information Day that had been scheduled for Saturday 16th May in central London, has now been cancelled. The next Information Day will be held in 2021 and details will be posted about this on our website later this year. Thank you for your understanding.
New UK Steroid Emergency Card
The UK's Society for Endocrinology have released a downloadable version of their steroid emergency card early due to the coronavirus pandemic. Anyone on replacement steroids (adrenal insufficient) should print out, complete and keep a card with you in case of emergencies.
We're keeping in touch with our Medical Advisory Team to bring you guidance and recommendations on avoiding the current coronavirus pandemic. Click to read the full article with links and check back regularly for updates.Latest update: 06/04/2020
Celebrity Patron Supports MEN2B and Me Film
Actor and AMEND Celebrity Patron, Shaun Williamson, famous as Barry in Eastenders and as himself in Extras, wants your vote for our film about Ethan and his condition, #MEN2B, and incurable cancer, #MTC.
Voting open again for Charity Film Awards
In January, after a public vote, our film about Ethan and his diagnosis of MEN2B was shortlisted in the 2020 Charity Film Awards. The second phase of voting is now open and we need your support once again.
Spring Regional Meet-ups
There are 6 free Regional Meet-ups organised for this Spring: Yorkshire and the Southwest (14th March), Leicestershire (22nd March), East Anglia and Scotland (28th March), Northeast (29th March). Come along for a cuppa and a chat with your Regional Volunteer. Refreshments and information resources are available at each meeting.
February 4th is World Cancer Day
The theme for World Cancer Day on February 4th is 'I am, and I will'. Keep an eye out on our social media channels as we raise awareness of the cancers within our community, from adrenocortical cancer, to medullary thyroid cancer and pancreatic neuroendocrine tumours. There will be messages directly from some of our members and plenty to learn throughout the day.