AMEND news in 2020
Updated Advice for the Extremely Vulnerable
22/06/2020Today, the Government is outlining the next steps for those people in the UK who were identified as extremely vulnerable, and who have been shielding since lock-down. These changes are implemented beginning 6 July.
Design a Gland Competition!
For Children's Art Week (science theme) from 29th June to 5th July, we'd like our youngsters to Design a Gland! It can be as weird, wacky and colourful as they like. Submit entries by 5th July to be in with a chance of winning one of our prizes.
Cancer52 Patient Survey on COVID-19
✍️ Cancer52, an umbrella group for rare cancers, is running a patient survey for cancer patients regarding your experiences during the coronavirus crisis. They will use the results of the survey to understand how the Covid-19 crisis has affected people with rare and less common cancers particularly on topics like treatment and support; any issues around shielding, and anxieties, concerns and hopes for the future.Please contribute as an endocrine/neuroendocrine cancer patient if applicable. Thanks! 👍
COVID-19 Study Results Updated
We are now up to 21 responses from people with MEN syndromes to our research study on COVID-19. These include 3 people who needed to visit hospital for severe breathing problems.
Introducing SDH Syndromes Films’ Launch
We are delighted today to launch our new patient experience films about Succinate Dehydrogenase (SDH) Syndromes. These were produced as part of our SDH Support UK project thanks to a grant from Advanced Accelerator Applications.
New Dates for Members’ Meetings
Wherever you live, AMEND members are welcome to join any of these gatherings, but you must register first. Sadly, you will need to provide you own tea and biscuits! Online meetings for our members have been organised so far for the following dates:
- Saturday 9th May (2-3pm)
- Saturday 13th June (10am)
- Saturday 4th July (2-3pm)
10@10 Mindful Mondays
New Relaxation Series10@10 Mindful Mondays is a series of 6 relaxation sessions to be streamed by AMEND every Monday at 10am. Each session is run by Mindfulness Practitioner, Peter Berry, for 10 minutes and will be helpful for anyone feeling overwhelmed during Lock-down or for health professionals, carers or key workers during the COVID-19 crisis. Free and open to all
Charity Film Awards Double Awards for AMEND!
It was a great night on Tuesday 21st April at the Charity Film Awards, streamed online due to the Coronavirus pandemic. AMEND's Film, MEN2B and Me: Ethan (his own words), starring young Ethan Holliman, picked up two awards in our category: The Silver Judges Award and the People's Choice Award. Thank you to Ethan, Red Goat Productions, Charity Film Awards, and all who voted for the film!
Charity Film Awards Night!
Tonight is the Charity Film Awards Ceremony, which will be streamed online from 7pm. However; before that, we will have a Pre-Awards Party, with interviews with our Film Star, Ethan, his family and our film's producer, Michelle Maynard from Red Goat Productions. The Party finishes will a lovely tune or two from mother and son musicians (and AMEND members), Anne and Gillie.
AMEND Joins Amazon Smile
AMEND is now registered with Amazon Smile. This programme means that, with every online order you make with Amazon, they donate to AMEND! It doesn't get much simpler than that! Select AMEND as your charity of choice when you shop online. Thank you!