AMEND news in 2020
Impact of COVID-19 on Emotional Health in MEN Syndromes
We present our snapshot report into the impact of the 2020 coronavirus pandemic on our multiple endocrine neoplasia community in which we find a slightly more negative effect in those people who rate their health as 'fair' or 'poor'.
2021 Project to Educate GPs
We are excited to let you know that our focus for 2021 will be on developing resources for GPs and other primary care health workers. Our members have been asking for us to do this for some time now and we are therefore launching a Christmas fundraising campaign to help fund this.
National Lottery Grant for Counselling Service
We're very grateful to the National Lottery's COVID-19 Community Fund for their grant of £9,000 to help fund our members' free Counselling Service for the next 12 months.
Film Stars Needed (aged 14-25)!
Do you have an MEN or PPGL Syndrome? Are you aged 14-25? Do you live in the UK? Do you want to help make life easier for other young people with genetic syndromes? If you answered 'Yes', then click to learn more!
Survey on Impact of COVID-19 on Mental Health
AMEND is undertaking a year-long study into the impact of COVID-19 on the mental health of those who live with MEN and PPGL syndromes in the UK. Answers to the survey are anonymous and data will be shared appropriately to help guide potential improvements in care for the future. Thank you for your help.
Liam’s Virtual London Marathon Success
On Sunday 4th October, in the pouring rain, Liam Connery completed his virtual London Marathon by doing laps of the Crystal Palace Football Club ground where he works in South London. He ran for AMEND and specifically for MEN2B sufferer, Ethan Holliman who stars in two of our MEN2B and Me films, raising an astonishing £4,800 so far.
AMEND Face masks now available to buy
AMEND's new, superior 3-layer cotton, washable and resusable face masks are now available to buy from our online shop in adult and children's sizes.
New Group for PPGL Syndromes Launched
AMEND are delighted to announce the formal formation of a new sub-group of our charity; Phaeo Para Support UK. PPSUK is a part of AMEND specifically designed for our members with inherited Phaeo Para Syndromes (such as those caused by SDH, TMEM127 and MAX mutations).
New Fundraising Events
Our website lists a wide variety of ways that our members and supporters can fundraise for AMEND during these strange times, from running to cycling and everything in between! Why not encourage your friends and family to support AMEND, a small charity that works hard to provide all its information and services for free to those who need them?
Phaeo Para Awareness Week
For the last week of August, we are thrilled to be partnering with the Pheo Para Alliance in the USA and other patients organisations to raise awareness of phaeochromocytomas, paragangliomas, and in particular, the tumours that occur in MEN2, MEN3 and Phaeo Para Syndromes.