1 Sep 2020
New Group for PPGL Syndromes Launched
While RET gene (MEN2/3) phaeo patients will still be covered by AMEND, PPSUK provides a new and more appropriate identity and home for our inherited Phaeochromocytoma and Paraganglioma Syndromes patients.
New Website
On Monday 24th August, 2020, we launched the brand new website for PPSUK. This houses the newly updated information about the syndromes and tumours, together with information on our usual support services.
Click here to view the website.
New Patient Information Book
On the same day, we also launched our brand new publication, Inherited Phaeochromocytoma & Paraganglioma Syndromes. Developed with the help of our Medical Advisory Team and special expert advisers, this provides more detailed information on all aspects of these genetic diseases.
New Clinic Resources
We’ve not forgotten our health colleagues. New clinic leaflets and posters are also available to download from the new site.
Click here to download clinic resources
.