• Living with any on-going health condition is challenging, whether you’re newly diagnosed, ‘had it for ages’, or if someone you’re close to has been diagnosed.

    Any on-going condition has its ups and downs: sometimes it’s more in the background and sometimes it’s more ‘in your face’. Often, talking to family members or friends can help you feel supported, but sometimes it may be helpful to speak with someone who has ‘been there and done that’.

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Peer Support

  • We offer two different ways to speak with others affected by MEN Syndromes:

    • Private Facebook Group – all registered members of AMEND affected by MEN syndromes are invited to join our private Facebook Group specifically for these conditions. You can join here now for FREE.
    • Peer Support Meetings – our volunteers run regular virtual meetings for those affected by MEN (and PPGL) syndromes, both patients and partners/carers. You can find out more about these here.

     

    “Since I have joined this group, I have never felt alone. I have made friends who I have yet to meet in person who have been with me during the highs and lows, day and night. A wonderfully supportive, non judgemental community of beautiful people. This group is invaluable in every way providing emotional and practical support and own experiences.”

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Counselling Service

  • Sometimes, the thoughts, feelings or situations you are experiencing might feel complicated, confusing and difficult to talk about. That’s when it can feel helpful to talk to someone who has been trained to help you express and explore your thoughts and feelings from a more neutral position. It can also be hugely helpful to have practices and tips you can use on a daily basis to help calm your mind and thoughts. AMEND’s free and confidential Online and Telephone counselling service is available for all our registered patients and family members.

    Our counsellors are trained and experienced practitioners registered with either the British Association for Counselling and Psychotherapy www.bacp.org.uk, or the United Kingdom Council for Psychotherapy www.ukcp.org.uk. They also have additional training and experience in understanding and managing the impact of MEN, and associated conditions.

    Our Counsellors are Rebecca Hargreaves (Lead Counsellor), and David Phipps.  They are often to be found providing valuable input at our Annual Patient Information Days. Find out more about our Counsellors

    Our Counselling Service is provided in partnership with rareminds CIC 

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More Resources

  • Rareminds Wellbeing Hub

    Rareminds Wellbeing Hub contains a huge amount of information on emotional wellbeing, covering such topics as dealing with diagnosis, living with uncertainty, and talking about dying, among others.

    >CLICK HERE TO GO TO THE WELLBEING HUB

     

    Information on Mindfulness

    Sometimes it’s helpful to have strategies you can use to help you on a day-to-day basis when coping with conditions like MEN. To help you develop these strategies, AMEND have produced publicly available podcasts and introductory video about Mindfulness. Patients, carers and family members affected by MEN can access these via the AMEND YouTube Channel

     

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