13 Jul 2020
Phaeo Para Awareness Week
For the last week of August, we are thrilled to be partnering with the Pheo Para Alliance in the USA and other patients organisations to raise awareness of phaeochromocytomas, paragangliomas, and in particular, the tumours that occur in MEN2, MEN3 and Phaeo Para Syndromes.
The aim is to:
- Inspire & empower those affected by these tumours to tell their story
- Raise awareness of the tumours and syndrome among health care providers
- Educate patients and caregivers on the illness
- Build understanding amongst constituents of the struggles of pheo para patients
What can you do to help?
We would love to hear your stories of diagnosis, treatment and any other aspect you’d like to share. We will use them together with our newly produced films to help flood the web with information about phaeochromocytomas and paragangliomas, particularly in the genetic context as part of the Phaeo Para Syndromes and MEN2 and MEN3. Download the template below and get writing/typing!
My Story Template