AMEND news in 2016
New Medical Advisory Team Member
We are delighted to announce that Professor Maralyn Druce has joined AMEND's Medical Advisory Team. Professor Druce, a consultant endocrinologist from St Bartholomew's Hospital in London has special expertise in medical education and we know that she will be a great addition to our wonderful team.
Let’s Talk About NETs!
NET Cancer Day will be upon us once again on 10th November. This year's theme is 'Let's Talk About NETs' and there are plenty of ways to get involved to help raise awareness of the neuroendocrine tumours (NETs) that are involved in multiple endocrine neoplasia (MEN).
Films Now Available to View
Films of the main presentations at AMEND's recent Annual Patient Information Day are now available to view. These include the basic sessions on MEN1 and MEN2, as well as talks on family planning, steroid dependency in MEN2 and pancreatic tumours in MEN1. Huge thanks to Andy Smith from Firstsight Communications Ltd for free filming services.
Big Give Christmas Challenge
This year, for the first time, AMEND has signed up to The Big Give Christmas Challenge. We are aiming to raise a total of at least £7,000 to fund a project to develop digital resources for young people (aged 16-25) about the issues they face living with MEN. The money will be raised by a combination of Pledges which will match-fund any general donations received during a short 72-hour window from midday 29th November to 12pm on 2nd December. If we're really lucky, The Big Give organisation's Champions may additionally match donations, meaning that your donation could be doubled or even quadrupled! To learn more about becoming a Pledger or Donor for our campaign, and for more details about the project itself,
A record was broken at AMEND's 13th Annual Patient Information Day held in London on Saturday 7th May, when almost 100 participants gave up a day in the sun to learn about MEN and to socialise for mutual support. A superb variety of talks were available from some excellent speakers. Main talks were filmed as usual and will be available free to view via this website and our YouTube channel shortly. Thank you to all who came, and all who were involved in the day and its organisation.
New Celebrity Patron for AMEND!
We are thrilled that actor, Shaun Williamson, best known for his role as 'Barry' in Eastenders, has agreed to become a Patron of AMEND. Kent-based Shaun has a cousin with MEN2a and visited the AMEND offices on Wednesday 27th April to find out more about the charity and the families whom we support. Shaun commented, 'As a local, born and bred, it's an honour to be able to help a Kent-base charity which is doing such great work.' We look forward to working with Shaun to raise awareness of AMEND and multiple endocrine neoplasia. Watch this space.... Welcome to the team Shaun!
2016 Information Day
ONLINE BOOKING NOW CLOSED! Saturday 7th May, Central London This year, we return to central London for our popular Annual Patient Information Day where we will be looking at topics including: steroid dependency pancreas - surgery vs watch and wait family planning partners' & parents' session emotional well-being
Get Fit Goals!
Have you made a New Year's resolution to improve your fitness? If so, it's great to have a goal to aim for. Why not join us on one of our short and sharp fundraising fitness challenges during 2016? Climb Mount Snowdon by night, cycle from London to Paris in 24 hours, or run 10k through the heart of London. We would love you to join one of our teams and help raise money for AMEND.