AMEND news in Month: May 2026
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Additive effect of RET polymorphisms in MEN2A-associated hyperparathyroidism
This study looks at people with a rare inherited condition called MEN2A. This condition can cause several health problems, including thyroid cancer, adrenal gland tumours, and overactive parathyroid glands (called hyperparathyroidism, or HPT). Not everyone with MEN2A develops HPT, and doctors want to understand why.
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Cardiovascular Risk Profile of Low-dose Prednisolone and its Effect on the Quality of Life in Patients with Adrenal Insufficiency
This study looked at people with adrenal insufficiency, a condition where the body does not make enough important adrenal gland hormones. These patients need daily steroid medicine to stay well.
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Guideline: Transition from Paediatric to Adult Endocrine Care
This joint guidance from the European Society for Endocrinology and European Society for Paediatric Endocrinology explains how to support young people with hormone (endocrine) conditions as they move from children’s services to adult healthcare. The move to adult care is a very important time, usually between the ages of about 12 and 25. Many young people stop attending appointments during this period, which can harm their long-term health.
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Adrenal Crisis Patient Survey
Building on the earlier study, the Addison’s Self-Help Group is leading on a UK project called, The Real Story: Adrenal Crisis Management in the UK, which involves a follow up survey and in-depth interviews to capture patient experiences of preventing and managing adrenal crisis. AMEND is one of the patient groups collaborating so that our communities can be heard too.
Learn more and participate