AMEND news in Month: February 2021
UK Rare Disease Framework
The Department of Health & Social Care published it's UK Rare Diseases Framework on January 9th 2021. The Framework will set out a coherent, national vision on how the UK will improve the lives of those living with rare diseases.
Rare Disease Day 2021
This Rare Disease Day (Sunday 28 February), we will be launching our brand new resources for young adults (aged 13-30). Thanks to our wonderful volunteers, these include a range of films on aspects of living with MEN syndromes as a young person. These will be available from 9am on the 28th on our website and social media channels!
Desert Trek to Petra
Join us on our fundraising trek through the desert in Jordan to the ancient city of Petra! A great adventure and challenge for October 2022. Sign up now!
Annual Information To be Held in October
We are maintaining our optimism with regard to our free 2021 Annual Patient Information Day! Rescheduled to Saturday 16th October and held at the Paddington Novotel in London, we hope to see you all there again in person! Book Now...
Pet & Pamper Raffle!
Enter our 2021 Pet & Pamper raffle for a chance to win an exclusive hand-drawn pet portrait by artist, Rob Ballentine, or your choice of scented candle and room diffuser from pamper experts, Willow & Tea. All profits support AMEND!