24 Feb 2021
UK Rare Disease Framework
The Department of Health & Social Care published it’s UK Rare Diseases Framework on January 9th 2021. The Framework will set out a coherent, national vision on how the UK will improve the lives of those living with rare diseases.
The UK Rare Diseases Framework outlines 4 high-level priorities for rare diseases in the UK over the next 5 years:
- helping patients get a final diagnosis faster
- increasing awareness of rare diseases among healthcare professionals
- better coordination of care
- improving access to specialist care, treatments and drugs
If you are interesting in learning more, then click here to visit the UK Government’s website where you can download the full document.