16 May 2020
Introducing SDH Syndromes Films’ Launch
This is another set of cracking films from Red Goat Productions, starring Crystal Miller, Karen Williams and Andy Price. All three patients featured have an SDH Syndrome and were diagnosed genetically after presenting with paragangliomas. We hope that other patients find them useful and interesting. We are looking forward to using these films to raise awareness of SDH Syndromes and the tumours that can occur as part of the syndromes.
This film introduces you to our stars, Karen, Andy and Crystal who describe how they were each diagnosed with tumours that led to their eventual genetic diagnosis.
In this film, Crystal, Karen, and Andy tell us how their tumours were treated.
Andy, Karen and Crystal reflect on life with a genetic diagnosis and the impact that this has on family and the future.
Introducing SDH Syndromes - Diagnosis
Introducing SDH Syndromes - Treatment
Introducing SDH Syndromes - Future