Association for
Multiple Endocrine
Neoplasia Disorders

Specific advice has been prepared by the UK’s Society for Endocrinology (and the ABCD) for people with the following:

• Adrenal insufficiency
• Diabetes (by the ABCD)
• Parathyroid conditions
• Neuroendocrine tumours (e.g. PNETs)

If you have Adrenal Insufficiency:

If you have symptoms, apply the ‘sick day rules’ immediately.  That is; double (or even triple) your oral dose of corticosteroid (hydrocortisone, prednisolone, etc).  If you become suddenly worse or are struggling to breathe and cope at home, give yourself your emergency injection of hydrocortisone and contact the NHS 111 Coronavirus Service [external link]

• The ADSHG have more information on this here[link]
• The Pituitary Foundation have more information on this here[external link]
• The Society for Endocrinology have more advice here [PDF Download]

If you are Receiving Cancer Treatment

You should be notified of any changes to your usual treatment routine.  If you have not heard from them and have treatment due, please contact the appropriate department as soon as possible.

• There is more information for people with cancer here [PDF download]
• For more information on staying at home click here
• For more information on caring for someone with coronavirus in your home click here

Advice Specific to People with Long-term (Underlying) Medical Conditions:

If you’re identified as being extremely vulnerable and at the highest risk level, you will be on a list that is held by the NHS who will contact you if you need to self-isolate (shield) at any time. 

• BBC Advice for People With Health Conditions
• Society for Endocrinology Advice for people with adrenal or pituitary insufficiency (taking corticosteroids for pituitary or adrenal problems) [PDF download]
• Steroid Dependent Patient UK Emergency Card download (complete and keep)
• British Thyroid Association and Society for Endocrinology Statement for patients with Thyroid Cancer [PDF Download]
• One Cancer Voice Advice for People with Cancer [PDF download]
• Diabetes UK [external link]
• European Society for Medical Oncology (ESMO) information for people with cancer [external link]

Videos

The following videos were produced at the start of the 2020 pandemic; however, they may still be of use.