• The following information on the current pandemic is aimed at those with the rare endocrine diseases for whom we provide information resources and support services.  It is from reputable sources such as the NHS and the World Health Organisation in conjunction with our own medical advisors and those of other organisations like AMEND.

    Beware of misinformation that is being spread on social media.

    On this page, we bring together, and regularly review and update, the information currently available to us, so check back regularly.

    As we cope with the 2nd wave over the Winter of 2020, it continues to be essential to follow the advice given out by the NHS which is detailed below.  Whilst the majority of people may have mild to no symptoms and not require hospital treatment, the virus spreads easily, and can have a devastating effect on those who are more vulnerable.

    We all need to do our bit to protect one another.

    This page was reviewed on: 19/11/2020


How is AMEND Affected by the Pandemic?

  • Here we go again!

    Jo and Helen worked continually from home throughout the COVID-19 crisis (March through August) and returned to work in the office from 1 September (that didn’t last long!).  The office is now closed again and both Jo and Helen are working their usual hours from home (Jo – full time 9am-5pm; Helen part time 9am-2pm Mon-Thurs).  Helen is also visiting the office once a week to process memberships and merchandise orders.  The following have been affected during the pandemic:

    NB:  We are no longer providing a day-by-day update.  Please visit the website of the BBC who cover the government briefings.

About COVID-19 and Endocrine Diseases

  • Who is at risk?

  • How will Coronavirus affect me if I catch it?

  • What should I do if I fall into a high risk category?

  • What can I do to reduce my chance of catching or passing on the virus?

  • 'Test & Trace' and Other Apps

  • What do I do if I have symptoms of Coronavirus?

  • What do I do if my child is showing symptoms?

  • What do I do if I have a Health Emergency or New / Worrying Symptoms?

  • How do I talk to my child about Coronavirus?

  • Relationship Problems

  • How to Make a Face Mask from a Tshirt

  • I have had Coronavirus. How can I help research?

  • How AMEND can help if you're struggling emotionally

  • How AMEND can help if you're struggling financially

  • Virtual Hospital Appointments

  • AMEND USA Resources

  • Prof John Newell-Price Talks About COVID-19 and NETs/MEN

  • Prof Wiebke Arlt Talks About COVID-19 and ACC

General Advice and Information:


Advice Specific to People with Long-term (Underlying) Medical Conditions:

If you’re identified as being extremely vulnerable and at the highest risk level, you will be on a list that is held by the NHS who will contact you if you need to self-isolate (shield) at any time. 


Fact-Checking of the Media:


Other Resources

  • Get Legally Speaking – podcasts of UK lawyers answering questions (from employment to marital queries, including COVID-19 related issues)
  • COVID-19 Scam Checker – Find out about coronavirus scams and how to avoid them (US-based site)
  • C-19 ZOE app: this is a daily COVID-19 Symptom Tracker for the UK.  It can be used daily (takes 1 minute) even if you feel well, and can arrange access to home testing if you report symptoms.  Click here for more information.
  • Serco (NHS) Test & Trace App:  Promised in June and finally released on 24 September, this app contains information about COVID-19, a facility to scan QR check-in codes, and will notify you to self-isolate if you have been potentially exposed to someone with the virus.  You may need to update your smartphone to be able to use this app.  Click here for more information.



  • The Right Way to Wash Your Hands

  • Make a 'no-sew' Face Mask