13 Jan 2023
Join Our Smartphone App Focus Groups!
This year our project to develop a smartphone app to replace and expand the reach of our MEN Patient Passports begins.
The Passports were developed in 2009 by co-Founder, Emily Fazal, and have been a fantastic free member benefit of AMEND, going out to all MEN patient members, allowing them to record everything to do with the management of an MEN syndrome.
Now that AMEND’s reach has extended to include other rare endocrine diseases, the time is right to do the same for the Passport. A Smartphone App will do this in a modern and widely accessible way, as well as being more environmentally friendly. We now need to hear from the App’s potential users!
We already have a large base of volunteers with MEN1, so we are now looking for up to 10 people each with MEN2, MEN3, ACC and PGL syndromes to take part in our project focus groups, where we will discuss the potential structure of the App.
The focus group will meet a maximum of twice over the next 12 months, with the first 1-hour meeting in February.
Please do sign up to provide the voice for your disease in this project!