At the summit, held in Lisbon, Portugal, Jo gave an overview of AMEND activities, and presented on the topic of health literacy in the context of patient information resources. It was also a great chance to meet with worldwide patient organisations and advocates for peer support and to exchange ideas and plans.
Through INCA, AMEND represents the nicknamed GenNETs – genetic syndromes of neuroendocrine tumours and cancers, such as MEN and PGL syndromes. She recently developed factsheets for INCA on MEN syndromes, ACC and MTC, based on our own booklets, and these will be released soon via the INCA website. She is also a former Chair and still a member of the INCA Communications Committee, responsible for NET Cancer Day on November 10th.