AMEND news in Month: March 2026

• Liquid Hydrocortisone Discontinued

  

  In May 2025, we were warned by the Department of Health and Social Care (DHSC) of a shortage of liquid hydrocortisone (hydrocortisone sodium phosphate), used for the prevention and treatment of adrenal crisis, with supply expected to resume in May 2026.  We share here the news that it has now been permanently discontinued.  For more information on this and what to do now, please visit our colleagues at the Addison's Disease Self-Help Group.

  Learn more at ASDHG website

• 2026 Patient Information Event Open for Bookings

  

  In 2025 Neuroendocrine Cancer UK and AMEND launched the Neuroendocrine Life Alliance.  To mark this collaborative partnership, we are hosting a Patient Summit bringing together patients, families, and experts for a day of information, support, and connection.  Registration is now open – we would love for you to join us.

  Click here for more information and to book

• 2026 UK Rare Cancers Act Now Law

  

  The Rare Cancers Act 2026 will prioritise long overlooked aspects of research, and has the potential to transform outcomes for those affected by rare and less common cancers.

  Read More

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