AMEND news in Month: March 2018
UK Research Registry Now Collecting Data
The UK National Research Registry for MEN1 and pancreatic neuroendocrine tumours (pNETs) is now collecting patient data. Patients can sign up to our specific mailing list in order to receive more information shortly about how to notify their specialists to get involved.
MEN1 and pNET Survey Launched
AMEND has launched a new survey today to find out what the patient information needs are of those with MEN1. The short survey takes just 12-15 minutes to complete and will help us raise awareness of patients' needs with the medical profession. Thanks in advance for your help.
Free Patient Event for Sporadic MTC
7th July, 2018 - Central London AMEND will be holding it's first Information Day for all those affected by sporadic (non-hereditary) medullary thyroid cancer (MTC) on Saturday 7th July this year. Thanks to a grant from SanofiGenzyme, the event is free to all patients, family members and carers, although tickets are limited in number. The day will incorporate talks from medical experts and plenty of time to network with fellow patients. Tickets are free including lunch and refreshments.
Please Help With This Important Survey
If you have MEN1, MEN2a, MEN2b or MEN4, the European MEN Alliance (EMENA), of which AMEND is a member, invites you to participate in an important patient survey on Quality of Care throughout Europe. Click to learn more.