Grant from The Albert Hunt Trust

We are hugely grateful to the Trustees of The Albert Hunt Trust who have granted AMEND £5,000 towards 2026 core costs.

2026 Peer Support Meetings

We are pleased to confirm the dates for our 2026 Peer Support Meetings for those with MEN or PPGL syndromes.  You can book now to connect with others.

Click here to view dates and to book

New Phase 3 Clinical Trial for Hyperinsulinism Drug

The upLIFT study, phase 3 clinical trial of ersodetug for tumour hyperinsulinism (HI), a drug from Rezolute (a late-stage rare disease company) is now enrolling participants through 2 UK centres.

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MEN2B Added to Generation Study

MEN2B RET mutation 918 to be added to the Genomics England’s Generation Study from March 2026.

Learn more