• My interest in supporting AMEND as a Trustee comes from a close connection to one of the related rare diseases, combined with my commercial/ entrepreneurial background.  As a rare disease, it’s critical that care providers, patients and their families are able to access clear information and support and AMEND plays a unique advocacy and educational role in this regard.

    I have worked in business consulting and as a director of a SME for a considerable time, helping a wide range of client organisations identify and engage with strategic, customer and people issues. At the same time, I have had shared director responsibility for governance, financing, planning, hiring and operational delivery across a portfolio of small businesses.

    At this stage in AMEND’s evolution, I would hope that my collected experiences and general knowledge might help steer board decisions in the interests of multiple stakeholders across the medical and patient communities.