AMEND news in Month: January 2023
Got a Story to Tell?
Our members love to read about the experience of others with their disease. Some lovely people have already written their 'stories' or starred in our films, but for our 20th anniversary, we're aiming to include another 20 stories on our webpage. Do you have a story to tell about you and your family's experience of diagnosis, treatment and life with your MEN syndrome? We'd love to hear it! We have a template for you to use if you want to, but otherwise, do your own thing and don't forget to send a few photos.
Check out our merchandise shop where you will find REAL bargains! Up to 83% off some items! Get a warm and cosy fleece for just a tenner!
Help us Develop GP Resources
This year AMEND is developing information resources for GPs on our rare endocrine tumours and syndromes. We need your input to ensure that the project is successful.
Join Our Smartphone App Focus Groups!
We are about to begin work on replacing our MEN Passports with a smartphone app. We need to hear the thoughts of those who will use it and are inviting those with MEN2 and MEN3 to join our Focus Group in February.
Peer Support Meetings for 2023
A range of dates and times for in-person and virtual Peer Support Meetings during 2023 have now been agreed. Our Peer Support Volunteers hope to welcome you to one soon!