Association for Multiple Endocrine Neoplasia Disorders

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Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

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Facebook Group

Join our private group here where fellow patients and professionals share their experiences and support.

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Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

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Latest news stories:

AMEND CEO, Jo Grey, and brave volunteer, Lu launched a new awareness raising campaign today to encourage other patients to be proud of their scars.

'Scars are our story and are nothing to be embarrassed about' said Jo.

Jumping on the backlash advertising to the controversial dieting powder, Jo and Lu with the help of AMEND's graphic designer, produced their own images to help others feel more confident on the beach in summer.

'Your scars show that you have been through a battle and came out victorious!' comments Lu.

Read more about the campaign here.

There was something for all the family again this year at AMEND's Annual Patient Information Day on Saturday 9th May in Leeds.

Around 70 attendees enjoyed social time and a range of fascinating talks, not to mention a great Mindfulness experience session.

You can now view all the main presentations together with their integral slides on our website.

Click here to view the videos and write-up