Association for Multiple Endocrine Neoplasia Disorders

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Empowering patients through education, support and friendship

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on multiple endocrine neoplasia (MEN) types 1, 2, and 3, medullary thyroid cancer (MTC), familial medullary thyroid cancer (FMTC), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, familial isolated pituitary adenoma (FIPA) and succinate dehydrogenase (SDH) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

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Facebook Group

Join our private group here where fellow patients and professionals share their experiences and support.

Visit group

Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

Donate today

Latest news stories:

ONLINE BOOKING NOW CLOSED!

Saturday 7th May, Central London

This year, we return to central London for our popular Annual Patient Information Day where we will be looking at topics including:

  • steroid dependency
  • pancreas - surgery vs watch and wait
  • family planning
  • partners' & parents' session
  • emotional well-being

As usual, there will be a creche for the younger family members, and a Teen Forum session for those aged 13-18.

Attendance, refreshments and lunch are all free!

THIS EVENT IS ALMOST FULL AND ONLINE BOOKING IS CLOSED.

To enquire about last-minute registration, please contact Helen at the office.

Visit our webpage for more information

See you there!

Have you made a New Year's resolution to improve your fitness?  If so, it's great to have a goal to aim for.

Why not join us on one of our short and sharp fundraising fitness challenges during 2016?

Climb Mount Snowdon by night, cycle from London to Paris in 24 hours, or run 10k through the heart of London.

We would love you to join one of our teams and help raise money for AMEND.

Visit our webpage for more information and inspiration!