Information, support and friendship
AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) type 1 or 2 or associated endocrine syndromes and tumours.
We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.
2014 1st Quarter Members' Newsletter Available
Members can now login and read the 44th AMEND Newsletter!
This quarter, we celebrate the launch of our MEN1 and MEN2 Comics, produced as a result of 'Project Superhero!'. There is also news of a plethora of events especially for patients (in the UK and the USA), our Rare Disease Day Roundup, lots of research news including AMEND's own into organ donation. Professional cook Andrea provides us with another gorgeous recipe, and Laura shares her story about MEN1. Finally, Debbie shares her beautiful tribute to her husband Chris Murray.
We are always pleased to receive your feedback on what you'd like to read, or for your own stories, so feel free to get in touch!
Please log on to read the newsletter.
MEN Comics for Kids are Here!
The first resources developed as a result of AMEND's 'Project Superhero!' are now available FREE to all patients and families affected by MEN1 or MEN2a/2b.
These beautiful, colourful and exciting publications, each 32 pages long, follow the stories of two real children, Rueben and Cameron as they learn about MEN1 and MEN2 respectively.
The AMEND-funded comics have been produced to help aid open and easier discussion about MEN within families affected by MEN as well as between the children and their healthcare team.
All registered AMEND members will automatically receive a copy.
To learn more about 'Project Superhero!' and the comics, and to order a FREE copy yourself, please visit our webpage.
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