Information, support and friendship
AMEND, AMEND USA, AMEND Australia and AMEND New Zealand are all run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.
We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.
London Patient Event
Once again, we are delighted that AMEND has been included in the annual Hammersmith MDT Endocrine Symposium, thanks to organiser and AMEND Trustee, Professor Karim Meeran.
The event combines professional medical training sessions which patients are free to attend, together with a parallel programme of patient information sessions, including a popular (and this year separate) Ask the Doctor session where all your burning questions about MEN will be answered.
The event will be held on Friday 12th December at the Hammersmith Hospital in London, and is well worth a visit.
The official start is early, but there are several arrival time options on the programme for patients depending upon what sessions you would like to attend.
Hope to see you there!
Janet's Bus Challenge Blog
Today (22 Oct) is Janet French's penultimate day of her great Bus Challenge - travelling from Dover to Land's End by public bus.
Janet (72) is raising awareness of MEN but also raising funds for the AMEND Research Fund in memory of Anouska Peters, who died in August from MEN3(2b).
Good luck Janet!!
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