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Information, support and friendship

  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship

AMEND, AMEND USA, AMEND Australia and AMEND New Zealand are all run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.

 

MEN patient perspective films

 

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Beach Body Awareness Campaign

AMEND CEO, Jo Grey, and brave volunteer, Lu launched a new awareness raising campaign today to encourage other patients to be proud of their scars.

'Scars are our story and are nothing to be embarrassed about' said Jo.

Jumping on the backlash advertising to the controversial dieting powder, Jo and Lu with the help of AMEND's graphic designer, produced their own images to help others feel more confident on the beach in summer.

'Your scars show that you have been through a battle and came out victorious!' comments Lu.

Read more about the campaign here.

 

UK Information Day

Leeds, North Yorkshire

Saturday 9th May, 10am-5pm

There is something for all the family again this year at AMEND's Annual Patient Information Day.

Come and learn both the basics and more detailed topics on MEN1, MEN2 and MEN3 (MEN2b), and have the opportunity to question an expert medical panel.

Meet the AMEND team and other patients and their families.

This event is FREE, and provides a programme and activities for teenagers, as well as a free creche for the younger kids.

Click here to learn more and book your place now!

   

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