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Information, support and friendship

  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship

AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.

 

MEN patient perspective films

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June Newsletter Ready in July!

The latest newsletter is now available for members to view.  It is rather late since AMEND has as usual been so busy!

Read all about the Annual Patient Information Days in both the UK and USA, our 2014 Research Award winner, and a US-based MEN2a My Story from Becky MacKenzie.  There is also another gorgeous recipe from our 'resident' published cook, Andrea.

We do hope you enjoy reading this quarter's offering.

Don't forget to log in first!

Click here to read the newsletter.

 

2014 British 10k London Run Team Success!

Congratulations and massive thanks to our 2014 team of British 10k London runners who ran on Sunday 13th July to raise money for AMEND, some in memory of lost loved ones.

Some of them are real gluttons for punishment as they were also members of our 2013 Team too!

Collectively, the team has already raised over £5,600 for AMEND which is fabulous.

Read more here and please do sponsor them if and while you still can!

   

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