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Information, support and friendship

  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship

AMEND, AMEND USA, AMEND Australia and AMEND New Zealand are all run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.

 

MEN patient perspective films

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Janet's Bus Challenge Blog

Today (22 Oct) is Janet French's penultimate day of her great Bus Challenge - travelling from Dover to Land's End by public bus.

Click here to keep up with Janet's journey on her blog page.

Janet (72) is raising awareness of MEN but also raising funds for the AMEND Research Fund in memory of Anouska Peters, who died in August from MEN3(2b).

Good luck Janet!!

 

International Scientific MEN Workshop

Thanks to the generosity of the Organising Committee, AMEND were privileged to be able to attend the 2014 International Scientific Workshop on MEN in the beautiful city of Vienna in Austria at the end of September.  It provided a fantastic opportunity to continue working with our European patient group colleagues on behalf of the European MEN Alliance (EMENA).

We have now produced a lay summary of some of the most interesting research presented at the meeting.  The summary has been reviewed by the AMEND Medical Advisory Team.

Click here to read the summary.

   

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