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Information, support and friendship

  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship

AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.

 

MEN patient perspective films

 

icon MEN1 Patient Experience Film Transcriptspacer

icon MEN2 Patient Experience Film Transcript

 

2016 Information Day

Saturday 7th May, Central London

This year, we return to central London for our popular Annual Patient Information Day where we will be looking at topics including:

  • steroid dependency
  • pancreas - surgery vs watch and wait
  • family planning
  • partners' session
  • emotional well-being

As usual, there will be a creche for the younger family members, and a Teen Forum session for those aged 13-18.

Attendance, refreshments and lunch are all free!

Visit our webpage for more information

See you there!

 

Get Fit Goals!

Have you made a New Year's resolution to improve your fitness?  If so, it's great to have a goal to aim for.

Why not join us on one of our short and sharp fundraising fitness challenges during 2016?

Climb Mount Snowdon by night, cycle from London to Paris in 24 hours, or run 10k through the heart of London.

We would love you to join one of our teams and help raise money for AMEND.

Visit our webpage for more information and inspiration!

   

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  • Facebook Page: https://www.facebook.com/#!/pages/Association-for-Multiple-Endocrine-Neoplasia-Disorders-AMEND/151203075059428
  • Twitter: @AmendInfo
  • YouTube: AMEND3

 

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