Information, support and friendship
AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.
We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.
A record was broken at AMEND's 13th Annual Patient Information Day held in London on Saturday 7th May, when almost 100 participants gave up a day in the sun to learn about MEN and to socialise for mutual support.
A superb variety of talks were available from some excellent speakers. Main talks were filmed as usual and will be available free to view via this website and our YouTube channel shortly.
Thank you to all who came, and all who were involved in the day and its organisation.
New Celebrity Patron for AMEND!
We are thrilled that actor, Shaun Williamson, best known for his role as 'Barry' in Eastenders, has agreed to become a Patron of AMEND. Kent-based Shaun has a cousin with MEN2a and visited the AMEND offices on Wednesday 27th April to find out more about the charity and the families whom we support.
Shaun commented, 'As a local, born and bred, it's an honour to be able to help a Kent-base charity which is doing such great work.'
We look forward to working with Shaun to raise awareness of AMEND and multiple endocrine neoplasia. Watch this space....
Welcome to the team Shaun!
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