Information, support and friendship
AMEND, AMEND USA, AMEND Australia and AMEND New Zealand are all run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.
We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.
MEN patient perspective films
Counselling Service Review
Registered members of AMEND who have used our free Counselling Service can help us to maintain and develop the service by telling us what you think.
Service user input is incredibly valuable in this regard as well as in helping to source funding to ensure that we can continue to provide the service.
Please take a few short minutes to complete our online survey.
Annual Patient Event - book now!
AMEND's UK Annual Information Day in 2015 will be held at the Thackray Medical Museum in Leeds, North Yorkshire on Saturday 9th May.
There will be something for everyone, including a creche for the younger family members and special information sessions and activities for the teenagers. A range of basic to advanced information sessions for adults on multiple endocrine neoplasias 1, 2a and 2b will occupy our morning, with our popular Ask the Expert Panel session in the afternoon. There will be plenty of time for socialising with fellow patients, carers and AMEND staff and volunteers throughout the day as well as an additional opportunity to attend an informal dinner in the evening.
We do hope you can join us for our popular free event at this fascinating venue.
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