Association for Multiple Endocrine Neoplasia Disorders

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AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.

get in touch

Contact us today if you would like to join AMEND, get support or have a question to ask.

Send Email

Facebook Group

Join our private group here where fellow patients and professionals share their experiences and support.

Visit group

Make a donation

AMEND is a entirely funded by donations so your contribution is extremely welcome.

Donate today

Latest news stories:

NET Cancer Day will be upon us once again on 10th November.

This year's theme is 'Let's Talk About NETs' and there are plenty of ways to get involved to help raise awareness of the neuroendocrine tumours (NETs) that are involved in multiple endocrine neoplasia (MEN).

Click here to visit our webpage and find out more!

Don't forget to follow us on Facebook and Twitter on the day

This year, for the first time, AMEND has signed up to The Big Give Christmas Challenge.

We are aiming to raise a total of at least £7,000 to fund a project to develop digital resources for young people (aged 16-25) about the issues they face living with MEN.

The money will be raised by a combination of Pledges which will match-fund any general donations received during a short 72-hour window from midday 29th November to 12pm on 2nd December.  If we're really lucky, The Big Give organisation's Champions may additionally match donations, meaning that your donation could be doubled or even quadrupled!

To learn more about becoming a Pledger or Donor for our campaign, and for more details about the project itself, please visit our webpage.