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Information, support and friendship

  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship

AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.

 

MEN patient perspective films

 

icon MEN1 Patient Experience Film Transcriptspacer

icon MEN2 Patient Experience Film Transcript

 

New Celebrity Patron for AMEND!

We are thrilled that actor, Shaun Williamson, best known for his role as 'Barry' in Eastenders, has agreed to become a Patron of AMEND.  Kent-based Shaun has a cousin with MEN2a and visited the AMEND offices on Wednesday 27th April to find out more about the charity and the families whom we support.

Shaun commented, 'As a local, born and bred, it's an honour to be able to help a Kent-base charity which is doing such great work.'

We look forward to working with Shaun to raise awareness of AMEND and multiple endocrine neoplasia.  Watch this space....

Welcome to the team Shaun!

 

2016 Information Day

ONLINE BOOKING NOW CLOSED!

Saturday 7th May, Central London

This year, we return to central London for our popular Annual Patient Information Day where we will be looking at topics including:

  • steroid dependency
  • pancreas - surgery vs watch and wait
  • family planning
  • partners' & parents' session
  • emotional well-being

As usual, there will be a creche for the younger family members, and a Teen Forum session for those aged 13-18.

Attendance, refreshments and lunch are all free!

THIS EVENT IS ALMOST FULL AND ONLINE BOOKING IS CLOSED.

To enquire about last-minute registration, please contact Helen at the office.

Visit our webpage for more information

See you there!

   

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