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Information, support and friendship

  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship
  • AMEND Information, support and friendship

AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) types 1, 2 and 3 and associated endocrine syndromes and tumours.

We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.

The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MEN3, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.

 

MEN patient perspective films

 

icon MEN1 Patient Experience Film Transcriptspacer

icon MEN2 Patient Experience Film Transcript

 

Big Give Christmas Challenge

This year, for the first time, AMEND has signed up to The Big Give Christmas Challenge.

We are aiming to raise a total of at least £7,000 to fund a project to develop digital resources for young people (aged 16-25) about the issues they face living with MEN.

The money will be raised by a combination of Pledges which will match-fund any general donations received during a short 72-hour window from midday 29th November to 12pm on 2nd December.  If we're really lucky, The Big Give organisation's Champions may additionally match donations, meaning that your donation could be doubled or even quadrupled!

To learn more about becoming a Pledger or Donor for our campaign, and for more details about the project itself, please visit our webpage.

 

Films Now Available to View

Films of the main presentations at AMEND's recent Annual Patient Information Day are now available to view.

These include the basic sessions on MEN1 and MEN2, as well as talks on family planning, steroid dependency in MEN2 and pancreatic tumours in MEN1.

Click here to go to the webpage.

Huge thanks to Andy Smith from Firstsight Communications Ltd for free filming services.

   

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