Information, support and friendship
AMEND is run by patients, for patients, to inform and support anyone affected by Multiple Endocrine Neoplasia (MEN) type 1 or 2 or associated endocrine syndromes and tumours.
We are here to break the isolation so often felt by those with these rare diseases, and we would be delighted to welcome you into our 'family'.
The aim of our website is to direct you as quickly as possible to our support services and to information you can trust on MEN1, MEN2, MTC (medullary thyroid cancer), FMTC (familial medullary thyroid cancer), adrenal gland tumours (phaeochromocytomas), parathyroid hyperplasia, paragangliomas, FIPA (familial isolated pituitary adenoma) and SDHx (succinate dehydrogenase) disorders.
Joining Hands Around the World
Today, Friday 28th February, is International Rare Disease Day!
AMEND members from around the world are showing their solidarity by joining hands in a collage of smiles!
It's never too late to join in and raise awareness of rare diseases like multiple endocrine neoplasia. Just send us your photo.
Jack's Kayaking Challenge
Young Jack's family is affected by MEN1. As part of his school course work, Jack had to organise a fundraising event. Luckily for us, Jack has chosen to support AMEND in his challenge, a 10k kayak!
I hope you will support Jack by sponsoring him at http://uk.virginmoneygiving.com/JackMaynard
Thank you and good luck Jack!
We look forward to hearing how you got on.
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