• Novotel Paddington

    3 Kingdom St, Sheldon Square, Paddington, London W2 6BD

    10:00 until 17:30


  • Due to the continued risk from the Coronavirus pandemic, the 2021 Annual Patient Information Day has been moved from May to October.  We hope that, by the autumn, almost everyone will have been vaccinated against the virus, and that events such as this will be safer for all.

    We may hold some virtual information events in May, depending upon the availability of our health professional volunteers (many of whom are currently working on covid-19 wards).

    Please check this page and our social media channels regularly for updates.

    This programme is draft and subject to change without notice


    09:30-10:00       Arrival and refreshments

    10:00-10:30       Welcome and Overview of AMEND’s (incl. PPSUK/AASUK) activities (CEO, Jo Grey)

    10:30-12:30       Disease-specific Patient Experience & Q&A sessions

        • MEN1: Patient speaker and medical expert
        • MEN2: Patient speaker and medical expert
        • MEN3:  Patient discussion and medical expert
        • PPGL syndromes:  Patient speaker and medical expert
        • MTC: Patient speaker and medical expert
        • ACC:  Patient speaker and medical expert

    12:30-14:00       Lunch break & Exhibition tables

    14:00-15:30       AMEND 2019-2020 Research Awards updates (MEN1, MEN2/3, PPGL, ACC)

    15:30-16:00       Refreshment break

    15:30-16:00       Diet in endocrine disease

    16:00-17:00       Relaxation or Movement Session

    17:15-17:30       AMEND Annual General Meeting (members only)

    17:30-18:00       Celebration

    (Our Rareminds Counsellors will be available throughout the day for one-to-one or group counselling sessions)



  • We are already taking bookings for the 2021 event.  Just click on the link below.


  • Event Venue Hotel

    NOVOTEL Paddington

    3 Kingdom St, Sheldon Square, London W2 6BD

    £199 per room inc. breakfast – WHEN BOOKING  MENTION  ‘AMEND’ TO GET THIS RATE


    Other Hotels

    (Rates may change.  Book direct or using a booking website)


    Hilton London Paddington

    146 Praed  Street, LONDON, W2 1EE

    Approx. £200


    Hotel Mercure Paddington

    144 Praed St, Paddington, London W2 1HU

    Approx. £150


    Ascot Hyde Park Hotel

    11 Craven Rd, Tyburnia, London W2 3BP

    Approx. £115


    Paddington Apartments (via booking.com)

    9 Talbot Square, London W2 1TR

    Approx. £115


    Premier Inn Euston (2 miles away)

    1 Dukes Road, London,WC1H 9PJ

    Approx. £100


    Travelodge Marylebone (0.7 miles away)

    Harewood Row, Marylebone, London NW1 6SE

    Approx. £80 – 110


    Days Inn Hyde Park

    148-152 Sussex GardensPaddingtonLondon W2 1UD