• Hilton Hotel, Victoria Quays, Sheffield

    A superb day was had by all on Saturday 11th May.  Anyone affected by MEN1, MEN2A, MEN2B, SDHx, ACC and MTC were included in the day.  Each disease had their own specialist-hosted Q&A session for 1 1/2 hours.  Our guest speaker at the end of the day was Ex-Emertius Professor Edzard Ernst who gave us the facts on Complementary & Alternative Medicine.

  • Thank you everyone involved for making this a hugely successful day:  Professor John Newell-Price, Professor Stephen Ball, Dr Michael O’Reilly, Dr John Ayuk and Professor Jonathan Wadsley, Kym Winter, Steve Hartley, Peter Berry, Joel and Hope Russell-Winter, Professor Edzard Ernst, Helen Blakebrough, Megan Delahunty-Light, Gill Masters, Nikie Jervis, Crystal MacLeod, and all the staff at the Hilton Sheffield.


    “Thank you for giving us the chance to attend this Information Day.  As a parent (not carrier) I feel I have a better understanding of what the future might hold, and trying to be more positive about it.  Have also met some lovely people and shared tears as well as laughter.”

    “Excellent day – gets better every year!  MEN1 session so engaging it over-ran by almost half an hour!”

    “Very good day – well done”

    “Brilliant day.  Really well organised & informative.  Thank you”  

    “Very good day with great sessions.  I love Kym – she is great.  The whole day did not feel rushed in any way.  Very good refreshments.”

    “Great day, thank you for the opportunity to attend.  Such a good insight as a health-care professional”

    “Fantastic day and brilliant speakers. Thank you very much for all your time and effort to make it such a good day”


    AMEND Annual Patient Information Day 2020

    The next Annual Information Day will be held in London on Saturday 16th May 2020.  The exact venue is yet to be confirmed; however you can already reserve your place(s)!

    Click here to book for APID2020