AMEND Research Registry use
AMEND provides the opportunity for patients to get involved in research by offering ourselves as a link between researchers and patients. Patients can register on the database by downloading, completing and returning the form below.
“Recruiting patients to research trials is always a challenging process. This is even more challenging when researching rare diseases such as MTC… Innovations such as the AMEND Research Registry at AMEND have allowed patients to put themselves forward to be involved in research and provided a direct link between researchers and patients. In our project this has helped recruit more people and in a much faster timeframe than we could have hoped using traditional methods.”
Research Registry Additional Information Form