AMEND news in Tag: PPGL syndromes
First Three Speakers for 2023 Event Confirmed!
We are pleased to confirm the first three speakers who will be presenting at our 2023 Annual Patient Information Day on Saturday 6th May in central London. Prof Ashley Grossman, Prof Karim Meeran, and Dr Ruth Casey will be hosting patient Q&A sessions on MEN1, MEN2 and PPGL syndromes respectively.
New Group for PPGL Syndromes Launched
AMEND are delighted to announce the formal formation of a new sub-group of our charity; Phaeo Para Support UK. PPSUK is a part of AMEND specifically designed for our members with inherited Phaeo Para Syndromes (such as those caused by SDH, TMEM127 and MAX mutations).