2024 Annual Patient Information Day

AMEND's 2024 Annual Patient Information Day will be held on Saturday 1st June, in central Birmingham. This event is open to anyone affected by MEN or PPGL syndromes, as well as for those affected by ACC and MTC.  Come along and benefit from a 2-hour Q&A session with an expert in your disease, as well as plenty of other relevant sessions.  There is a separate stream for young adults from 12 years of age. Tickets are available on a donation basis (minimum £1 per ticket).

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NETS in RETS

November 10th each year is NET Cancer Day, initiated by the International Neuroendocrine Cancer Alliance, of which AMEND is a member representing genetic neuroendocrine tumour syndromes.  To better explain the link between NETs and RETS (rare endocrine tumours and syndromes), join us for our webinar, NETs in RETS, with Professor Karim Meeran on Thursday 9th November from 18:00-19:00.

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AMEND Annual Patient Information Day Success

The sun was shining on Saturday 20^th May in London for our Annual Patient Information Day, and our venue beside the Regent’s Canal was the perfect place to receive all the members of our rare endocrine diseases communities who had booked to attend.

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2022 Annual Patient Information Day

Our 2022 Annual Patient Information Day for anyone affected by MEN and PPGL syndromes, ACC and MTC, will be held at the Holiday Inn, 25 Aytoun Street, Manchester M1 3AE, on Saturday 7th May.  We would love to see as many of our members and friends there as possible.  For more information on the programme and local hotels, as well as to book your spaces, please visit our dedicated webpage.

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Community Advisory Groups Still Recruiting

We are still seeking enthusiastic, motivated and knowledgeable people to volunteer as members of our Community Advisory Groups (CAGs) for MEN2, MEN3 and PPGL syndromes.  Our CAGs are already established for MEN1, ACC and MTC and some have already been involved in research projects and other activities.

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Selpercatinib Approved for Metastatic MTC

In September, selpercatinib (also known as LOXO) was approved in England (Cancer Drugs Fund) and Scotland (Interim Basis) for use in metastatic RET-mutation medullary thyroid cancer (MTC) as well as other RET-fusion positive thyroid cancers.

Get Ready for Thyroid Cancer Awareness Month!

September is Thyroid Cancer Awareness Month, and we'll be raising awareness of medullary thyroid cancer.  Here's how you can help.....!

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Community Advisory Groups Now Recruiting

Due to the recent increase in requests for patient perspectives into research projects and clinical trials design, we are seeking enthusiastic, motivated and knowledgeable people to volunteer in our Community Advisory Groups.  These are available for MEN syndromes, PPGL syndromes, ACC and MTC.

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Voting open again for Charity Film Awards

In January, after a public vote, our film about Ethan and his diagnosis of MEN2B was shortlisted in the 2020 Charity Film Awards.  The second phase of voting is now open and we need your support once again.

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February 4th is World Cancer Day

The theme for World Cancer Day on February 4th is 'I am, and I will'.  Keep an eye out on our social media channels as we raise awareness of the cancers within our community, from adrenocortical cancer, to medullary thyroid cancer and pancreatic neuroendocrine tumours.  There will be messages directly from some of our members and plenty to learn throughout the day.