NETS in RETS

November 10th each year is NET Cancer Day, initiated by the International Neuroendocrine Cancer Alliance, of which AMEND is a member representing genetic neuroendocrine tumour syndromes.  To better explain the link between NETs and RETS (rare endocrine tumours and syndromes), join us for our webinar, NETs in RETS, with Professor Karim Meeran on Thursday 9th November from 18:00-19:00.

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AMEND Annual Patient Information Day Success

The sun was shining on Saturday 20^th May in London for our Annual Patient Information Day, and our venue beside the Regent’s Canal was the perfect place to receive all the members of our rare endocrine diseases communities who had booked to attend.

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AMEND Invited to Host Session at ThyCa 2022 Survivor’s Conference

We are honoured to have been invited by ThyCa to participate in their 2022 virtual Thyroid Cancer Survivor's Conference, by developing a session about MTC in MEN2 and MEN3, to be held on Friday 16th September at 6pm UK-time.

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Selpercatinib Approved for Metastatic MTC

In September, selpercatinib (also known as LOXO) was approved in England (Cancer Drugs Fund) and Scotland (Interim Basis) for use in metastatic RET-mutation medullary thyroid cancer (MTC) as well as other RET-fusion positive thyroid cancers.

Get Ready for Thyroid Cancer Awareness Month!

September is Thyroid Cancer Awareness Month, and we'll be raising awareness of medullary thyroid cancer.  Here's how you can help.....!

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Research Fund Application Deadline Extended

AMEND's Research Award applications deadline has been moved from April 30 to August 31, 2020.  We know that most new research projects have now been postponed due to the current coronavirus pandemic, so hope that this new deadline will be more achievable.

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Voting open again for Charity Film Awards

In January, after a public vote, our film about Ethan and his diagnosis of MEN2B was shortlisted in the 2020 Charity Film Awards.  The second phase of voting is now open and we need your support once again.

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February 4th is World Cancer Day

The theme for World Cancer Day on February 4th is 'I am, and I will'.  Keep an eye out on our social media channels as we raise awareness of the cancers within our community, from adrenocortical cancer, to medullary thyroid cancer and pancreatic neuroendocrine tumours.  There will be messages directly from some of our members and plenty to learn throughout the day.