Buy a Bauble and Help AMEND

Help ensure that AMEND can keep on doing what it does for future generations by Buying a Bauble this festive season.  Come and decorate our virtual Christmas tree. Just donate, pick a bauble, upload a photo if you want, and leave a message for us or a loved one.  It's easy to do and every penny helps.

Buy a Bauble

Barri-affle Open!

Fans of ‘Barry’ from Eastenders and Extras, and of ‘Barrioke’ get your Barri-affle tickets now!  Our Celebrity Patron, Shaun Williamson, will record a personalised, Christmas shout-out for the winner of our Christmas raffle!  Closes 17th December.

Take me to the Barri-affle!

1000 Miles for AMEND!

During September, Alex Shanks cycled (uphill!) the 1000 miles from Land's End in Cornwall to John O'Groats in Scotland in aid of AMEND and in honour of his work colleague who has MEN1.  It was a huge effort that I just had to chat to him about...

Click here to learn more

Great North Run Success

Carly and her partner Martin recently ran the Great North Run for AMEND raising a wonderful total of £624 for AMEND. Carly kindly shared a few words about the experience.

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INCA SCAN 2025 Survey

If you have had any of the following neuroendocrine tumours alone or within your genetic syndrome, please have your say and participate in the INCA SCAN 2025 survey: medullary thyroid cancer, phaeochromocytoma, paraganglioma, duodenopancreatic tumour.

Rescheduled MTC Webinar Confirmed

We are pleased to confirm the new date for our rescheduled webinar on sporadic medullary thyroid cancer (spMTC).  Come and join us on Wednesday 19th November, 2025, from 19:00-20:30, and hear from and quiz our esteemed expert medical speakers, Drs Kate Newbold and Daniel Morganstein from The Royal Marsden Hospital in London.

Click here for more information and to book

Award for Peer Support Volunteer

It was a delight for AMEND CEO, Jo Grey, to visit Jennie Rayner recently to thank her for volunteering with us with a free hotel break from Room to Reward.  Jennie and her husband Paul are a stalwart in our work to provide support to our Adrenocortical Cancer (ACC) community; however, Jennie has recently had surgery for cancer recurrence.  Thank you and congratulations Jennie! 💚

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2025 Information Day Speakers Confirmed!

Our line-up of excellent expert speakers are now confirmed for our 2025 Annual Patient Information Day in central London.  Our friendly and essential information event for patients and partners affected by multiple endocrine neoplasia, inherited paraganglioma syndromes, and adrenocortical cancer is free and includes lunch and refreshments.  Come along and find out why it's so highly rated!

Click here for more information and to book

World Hormone Day 2025

On Thursday, 24 April, the global endocrine community will unite on the first World Hormone Day to raise awareness of the vital role of hormones in health and disease.  Hormones keep our health in check, yet most of us barely give them a second thought. They play a vital role in chronic conditions like diabetes, cancer and obesity, and over 400 rare  diseases. More than three-quarters of us will see a hormone specialist at some point in our lifetime.

Learn more and get involved

Webinar for Sporadic MTC Patients

AMEND is delighted to be hosting a free, live webinar for the sporadic medullary thyroid cancer (MTC) community on Wednesday 18th June from 19:00-20:30.  Our expert speakers are Consultant Endocrinologist, Dr Daniel Morganstein, and Consultant Clinical Oncologist, Dr Kate Newbold, both from the Royal Marsden Hospital in London.   We hope you can join us.

Click here to register