MEN2A Archives

Adrenal Crisis Patient Survey

Building on the earlier study, the Addison’s Self-Help Group is leading on a UK project called, The Real Story: Adrenal Crisis Management in the UK, which involves a follow up survey and in-depth interviews to capture patient experiences of preventing and managing adrenal crisis. AMEND is one of the patient groups collaborating so that our communities can be heard too.

Learn more and participate

2026 London Marathon Record!

This year, the London Marathon is held on Sunday 26th April, with a record number of runners participating in aid of AMEND! In addition to our Charity Ballot place recipient, Ed, three other runners are getting their running shoes on to raise essential funds for AMEND. We wish them all the luck in the world and hope that you can sponsor one or more of them.

CLICK HERE FOR MORE INFORMATION

Long-term calcitonin after thyroidectomy for medullary thyroid cancer in MEN2A

This study followed people with MEN2A who had their thyroid removed to understand how often long-term blood tests for calcitonin are really needed.

Click here for more information

National Cancer Plan for England Launched

Wednesday 4th February 2026, marked as World Cancer Day, saw the publication of the detailed National Cancer Plan for England by the Department of Health & Social Care

Click here to learn more

2026 Peer Support Meetings

We are pleased to confirm the dates for our 2026 Peer Support Meetings for those with MEN or PPGL syndromes. You can book now to connect with others.

Click here to view dates and to book

2025 Information Day Speakers Confirmed!

Our line-up of excellent expert speakers are now confirmed for our 2025 Annual Patient Information Day in central London. Our friendly and essential information event for patients and partners affected by multiple endocrine neoplasia, inherited paraganglioma syndromes, and adrenocortical cancer is free and includes lunch and refreshments. Come along and find out why it's so highly rated!

Click here for more information and to book

2025 Peer Support Meetings Confirmed

We are delighted to report that our Peer Support Volunteers have now scheduled a number of meetings (online or in-person) where you can meet others either to give or receive peer support. Grab a coffee and join us!

Click here for more information

AMEND Co-Authors Article on MEN2

We were honoured to be invited by surgeon, Mr Tom Kurzawinski, to co-write an article for the journal, Endocrine-Related Cancer, about patient experiences of living with a RET gene mutation (causing MEN2 and MEN3).

Click here to learn more

Survey for MEN Patients

The European MEN Alliance (EMENA), of which AMEND is an active member, has developed a survey for anyone affected by MEN syndromes, to find out what affected patients, partners and parents, consider to be the unmet needs in the patient pathways. Thank you for taking your time to complete this important survey.

Click here to take the survey

2024 Annual Patient Information Day

AMEND's 2024 Annual Patient Information Day will be held on Saturday 1st June, in central Birmingham. This event is open to anyone affected by MEN or PPGL syndromes, as well as for those affected by ACC and MTC. Come along and benefit from a 2-hour Q&A session with an expert in your disease, as well as plenty of other relevant sessions. There is a separate stream for young adults from 12 years of age. Tickets are available on a donation basis (minimum £1 per ticket).