AMEND news in Tag: MEN Syndromes
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Annual Patient Information Day Booking Open
The 2025 AMEND Annual Patient Information Day will be held on Saturday 31st May in central London. Disease-specific Q&A sessions with medical experts will be held in the morning and followed by other useful and topical sessions throughout the day. This event is FREE.
Click here for more information and to book
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2025 Peer Support Meetings Confirmed
We are delighted to report that our Peer Support Volunteers have now scheduled a number of meetings (online or in-person) where you can meet others either to give or receive peer support. Grab a coffee and join us!
Click here for more information
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Special Event for Scottish Members
Come and join Peer Support Volunteer for Scotland, Amanda Shaw, with special guest, Genetic Counsellor, Nicola Bradshaw, on Saturday 14th September for networking, peers support and information at this in-person event near Glasgow.
Click here for more information and to book
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New! Young Adults’ Survey
This year, AMEND wants to hear from our younger UK community members aged 12-25 about how their or their sibling’s condition affects them (if at all!), and what they would like to see AMEND do for them by way of activities and resources over the coming months and years. To do this, we have designed two short surveys (ages 18-25 and 12-17) that should take no more than 10 minutes to complete.
Click here for more information
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AMEND at World MEN 2023
At the end of April, AMEND CEO, Jo Grey, attended the World MEN Scientific Meeting in Marseille, France. She was invited to give a talk about patient perspectives of unmet needs in MEN syndromes.
Click here to read the article