AMEND news in Tag: adrenal insufficiency
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The Real Story Collaboration
AMEND continues its collaboration within this UK-wide, multi-stakeholder collaboration established to better understand and improve the management of adrenal crisis among people living with adrenal insufficiency, including Addison's disease. Adrenal insufficiency in our communities may be caused by removal of both adrenal glands and renders a patient dependent on steroid replacement medication.
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Cardiovascular Risk Profile of Low-dose Prednisolone and its Effect on the Quality of Life in Patients with Adrenal Insufficiency
This study looked at people with adrenal insufficiency, a condition where the body does not make enough important adrenal gland hormones. These patients need daily steroid medicine to stay well.
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Adrenal Crisis Patient Survey
Building on the earlier study, the Addison’s Self-Help Group is leading on a UK project called, The Real Story: Adrenal Crisis Management in the UK, which involves a follow up survey and in-depth interviews to capture patient experiences of preventing and managing adrenal crisis. AMEND is one of the patient groups collaborating so that our communities can be heard too.
Learn more and participate