AMEND news in Tag: adrenal crisis

• Adrenal Crisis Patient Survey

  

  Building on the earlier study, the Addison’s Self-Help Group is leading on a UK project called, The Real Story: Adrenal Crisis Management in the UK, which involves a follow up survey and in-depth interviews to capture patient experiences of preventing and managing adrenal crisis. AMEND is one of the patient groups collaborating so that our communities can be heard too.

  Learn more and participate

• Liquid Hydrocortisone Discontinued

  

  In May 2025, we were warned by the Department of Health and Social Care (DHSC) of a shortage of liquid hydrocortisone (hydrocortisone sodium phosphate), used for the prevention and treatment of adrenal crisis, with supply expected to resume in May 2026.  We share here the news that it has now been permanently discontinued.  For more information on this and what to do now, please visit our colleagues at the Addison's Disease Self-Help Group.

  Learn more at ASDHG website

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