AMEND news in Tag: Research
AMEND Awards 2 Research Grants for 2022
The Trustees are pleased to confirm the AMEND Research Awards for 2022. Our thanks to all the applicants, our judges, the Elliot Dallen Trust and fundraisers, the Akarca brothers.
New Publication on MEN3 (MEN2B)
A new publication, 'Frequency and Impact of Musculoskeletal Symptoms on Quality of Life in MEN2B' has just been published. The article is the culmination of a project by former MSc student, James Henderson from Queen Mary University in London, 'commissioned' by AMEND. Thanks to all those who participated in the research survey. We hope it will highlight the MSK problems experienced by a large number of those with the condition, and ultimately to encourage more research and improve care. The publication is Open Access and can be viewed for free.
Community Advisory Groups Still Recruiting
We are still seeking enthusiastic, motivated and knowledgeable people to volunteer as members of our Community Advisory Groups (CAGs) for MEN2, MEN3 and PPGL syndromes. Our CAGs are already established for MEN1, ACC and MTC and some have already been involved in research projects and other activities.
AMEND’s 2021 Research Grants Awarded
AMEND is pleased to announce the funding of 3 research projects in its 2021 Research Fund Award round. These included the John Pettit Award for MEN1 Research.
Community Advisory Groups Now Recruiting
Due to the recent increase in requests for patient perspectives into research projects and clinical trials design, we are seeking enthusiastic, motivated and knowledgeable people to volunteer in our Community Advisory Groups. These are available for MEN syndromes, PPGL syndromes, ACC and MTC.
Research Fund Application Deadline Extended
AMEND's Research Award applications deadline has been moved from April 30 to August 31, 2020. We know that most new research projects have now been postponed due to the current coronavirus pandemic, so hope that this new deadline will be more achievable.
COVID-19 and MEN Research Study
In collaboration with our Medical Advisory Team and Trustees, AMEND has developed a research survey for those in the UK with MEN disorders who believe or know that they have had COVID-19 (diagnosed via e.g. blood test or NHS111 online without a blood test). Patients, family members and health professionals involving in caring for those with MEN1, 2A & 2B, can complete the survey.