MEN2B Archives

Additive effect of RET polymorphisms in MEN2A-associated hyperparathyroidism

This study looks at people with a rare inherited condition called MEN2A. This condition can cause several health problems, including thyroid cancer, adrenal gland tumours, and overactive parathyroid glands (called hyperparathyroidism, or HPT). Not everyone with MEN2A develops HPT, and doctors want to understand why.

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Adrenal Crisis Patient Survey

Building on the earlier study, the Addison’s Self-Help Group is leading on a UK project called, The Real Story: Adrenal Crisis Management in the UK, which involves a follow up survey and in-depth interviews to capture patient experiences of preventing and managing adrenal crisis. AMEND is one of the patient groups collaborating so that our communities can be heard too.

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2026 London Marathon Record!

This year, the London Marathon is held on Sunday 26th April, with a record number of runners participating in aid of AMEND! In addition to our Charity Ballot place recipient, Ed, three other runners are getting their running shoes on to raise essential funds for AMEND. We wish them all the luck in the world and hope that you can sponsor one or more of them.

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The prostate is a common site of disease in patients with MEN2B and MTC

A recent study looked at young men with MEN2B (also known as MEN3), which causes medullary thyroid cancer. Doctors found that problems in the prostate were more common than previously thought, even in teenagers.

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National Cancer Plan for England Launched

Wednesday 4th February 2026, marked as World Cancer Day, saw the publication of the detailed National Cancer Plan for England by the Department of Health & Social Care

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MEN2B and Family Planning Survey

In collaboration with clinicians at St Bartholomew’s Hospital in London, AMEND would like to learn more about attitudes and experiences of those affected by MEN2B (also known as MEN3) to family planning.

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2026 Peer Support Meetings

We are pleased to confirm the dates for our 2026 Peer Support Meetings for those with MEN or PPGL syndromes. You can book now to connect with others.

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MEN2B Added to Generation Study

MEN2B RET mutation 918 to be added to the Genomics England’s Generation Study from March 2026.

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2025 Information Day Speakers Confirmed!

Our line-up of excellent expert speakers are now confirmed for our 2025 Annual Patient Information Day in central London. Our friendly and essential information event for patients and partners affected by multiple endocrine neoplasia, inherited paraganglioma syndromes, and adrenocortical cancer is free and includes lunch and refreshments. Come along and find out why it's so highly rated!

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2025 Peer Support Meetings Confirmed

We are delighted to report that our Peer Support Volunteers have now scheduled a number of meetings (online or in-person) where you can meet others either to give or receive peer support. Grab a coffee and join us!