AMEND news in Tag: MEN1
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National Cancer Plan for England Launched
Wednesday 4th February 2026, marked as World Cancer Day, saw the publication of the detailed National Cancer Plan for England by the Department of Health & Social Care
Click here to learn more
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New MEN1 App Launched
Today, AMEND has launched an app for MEN1 members ensuring that information is always at hand, even if offline. The app replaces the traditional, expensive, and slow-to-receive hardcopy MEN1 Member Pack.
Click here for more information
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2026 Peer Support Meetings
We are pleased to confirm the dates for our 2026 Peer Support Meetings for those with MEN or PPGL syndromes. You can book now to connect with others.
Click here to view dates and to book
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New Phase 3 Clinical Trial for Hyperinsulinism Drug
The upLIFT study, phase 3 clinical trial of ersodetug for tumour hyperinsulinism (HI), a drug from Rezolute (a late-stage rare disease company) is now enrolling participants through 2 UK centres.
Click to learn more
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2025 Information Day Speakers Confirmed!
Our line-up of excellent expert speakers are now confirmed for our 2025 Annual Patient Information Day in central London. Our friendly and essential information event for patients and partners affected by multiple endocrine neoplasia, inherited paraganglioma syndromes, and adrenocortical cancer is free and includes lunch and refreshments. Come along and find out why it's so highly rated!
Click here for more information and to book
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New Webcast! Parathyroid Surgery
Our latest Webcast on the topic of Parathyroid Surgery launches on Saturday 29th March at 08:00. In this episode, AMEND CEO, Jo Grey, talks to Mr Shad Khan, Endocrine Surgery at Oxford University Hospitals, about parathyroid surgery, particularly in the context of MEN1.
Click here to watch this and other Webcasts
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2025 Peer Support Meetings Confirmed
We are delighted to report that our Peer Support Volunteers have now scheduled a number of meetings (online or in-person) where you can meet others either to give or receive peer support. Grab a coffee and join us!
Click here for more information
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Survey for MEN Patients
The European MEN Alliance (EMENA), of which AMEND is an active member, has developed a survey for anyone affected by MEN syndromes, to find out what affected patients, partners and parents, consider to be the unmet needs in the patient pathways. Thank you for taking your time to complete this important survey.
Click here to take the survey
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2024 Annual Patient Information Day
AMEND's 2024 Annual Patient Information Day will be held on Saturday 1st June, in central Birmingham. This event is open to anyone affected by MEN or PPGL syndromes, as well as for those affected by ACC and MTC. Come along and benefit from a 2-hour Q&A session with an expert in your disease, as well as plenty of other relevant sessions. There is a separate stream for young adults from 12 years of age. Tickets are available on a donation basis (minimum £1 per ticket).
Click here for more information and to book
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Volunteer for a new research project
Genetic Counselling Student from Cardiff University, Emma Coats, would like to hear from patients with any of the MEN syndromes and who are based in the UK for her research study looking at patient experiences of surveillance (outpatient appointments, test, scans, etc).
Click here for more information