2024 Annual Patient Information Day

AMEND's 2024 Annual Patient Information Day will be held on Saturday 1st June, in central Birmingham. This event is open to anyone affected by MEN or PPGL syndromes, as well as for those affected by ACC and MTC.  Come along and benefit from a 2-hour Q&A session with an expert in your disease, as well as plenty of other relevant sessions.  There is a separate stream for young adults from 12 years of age. Tickets are available on a donation basis (minimum £1 per ticket).

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NETS in RETS

November 10th each year is NET Cancer Day, initiated by the International Neuroendocrine Cancer Alliance, of which AMEND is a member representing genetic neuroendocrine tumour syndromes.  To better explain the link between NETs and RETS (rare endocrine tumours and syndromes), join us for our webinar, NETs in RETS, with Professor Karim Meeran on Thursday 9th November from 18:00-19:00.

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AMEND Annual Patient Information Day Success

The sun was shining on Saturday 20^th May in London for our Annual Patient Information Day, and our venue beside the Regent’s Canal was the perfect place to receive all the members of our rare endocrine diseases communities who had booked to attend.

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AMEND Awards 2 Research Grants for 2022

The Trustees are pleased to confirm the AMEND Research Awards for 2022.  Our thanks to all the applicants, our judges, the Elliot Dallen Trust and fundraisers, the Akarca brothers.

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First Three Speakers for 2023 Event Confirmed!

We are pleased to confirm the first three speakers who will be presenting at our 2023 Annual Patient Information Day on Saturday 6th May in central London.  Prof Ashley Grossman, Prof Karim Meeran, and Dr Ruth Casey will be hosting patient Q&A sessions on MEN1, MEN2 and PPGL syndromes respectively.

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2022 Annual Patient Information Day

Our 2022 Annual Patient Information Day for anyone affected by MEN and PPGL syndromes, ACC and MTC, will be held at the Holiday Inn, 25 Aytoun Street, Manchester M1 3AE, on Saturday 7th May.  We would love to see as many of our members and friends there as possible.  For more information on the programme and local hotels, as well as to book your spaces, please visit our dedicated webpage.

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AMEND’s 2021 Research Grants Awarded

AMEND is pleased to announce the funding of 3 research projects in its 2021 Research Fund Award round.  These included the John Pettit Award for MEN1 Research.

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Community Advisory Groups Now Recruiting

Due to the recent increase in requests for patient perspectives into research projects and clinical trials design, we are seeking enthusiastic, motivated and knowledgeable people to volunteer in our Community Advisory Groups.  These are available for MEN syndromes, PPGL syndromes, ACC and MTC.

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Research Fund Application Deadline Extended

AMEND's Research Award applications deadline has been moved from April 30 to August 31, 2020.  We know that most new research projects have now been postponed due to the current coronavirus pandemic, so hope that this new deadline will be more achievable.

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February 4th is World Cancer Day

The theme for World Cancer Day on February 4th is 'I am, and I will'.  Keep an eye out on our social media channels as we raise awareness of the cancers within our community, from adrenocortical cancer, to medullary thyroid cancer and pancreatic neuroendocrine tumours.  There will be messages directly from some of our members and plenty to learn throughout the day.