• Saturday 20th May

    NCVO, Regents Wharf, 8 All Saints St, London N1 9RL


    We enjoyed a sunny day filled with learning and friendship at the 2023 Annual Patient Information Day.  You can read all about it in our News Section


    We do not film our sessions in order to protect patient privacy.  Some slides and handouts are available to download in the article via the link above.


    Those people who failed to cancel their tickets more than 2 weeks prior to the event or who did not turn up on the day are asked to donate £50 per ticket to offset the cost to AMEND of your unused place(s).  Such actions waste valuable charity funds that could be put to good use in our activities to support patients in need, and risk the future of these free events.



  • The 2023 Programme

    09:30-10:00  Registration and refreshments

    10:00-10:05  Introductions and housekeeping

    10:05-10:30  Welcome and overview of diseases and activities (Jo Grey, AMEND CEO)

    10:30-12:30  Disease-specific Q&A sessions (see below for arrangements for teenagers/young adults who do not want to attend this session)

    • MEN1 Q&A with Prof Ashley Grossman, Consultant neuroendocrinologist (Royal Free Hospital, London)
    • MEN2 / MEN3 / MTC Q&A with Prof Karim Meeran, Consultant endocrinologist (Charing Cross Hospital, London)
    • Phaeo Para Q&A with Dr Ruth Casey, Consultant endocrinologist (Addenbrooke’s Hospital, Cambridge)
    • Adrenocortical Cancer Q&A with Dr Cristina Ronchi, Consultant endocrinologist (QE Hospital, Birmingham)

    12:30-14:00  LUNCH BREAK

    14:00-15:30  Living with Rare Endocrine Diseases Session

    • 14:00-14:30  Blood Tests vs Physical Symptoms: what to do when the two don’t match (Prof Karim Meeran, London)
    • 14:30-15:00 Resilience and Managing Uncertainty (Counsellor, Zubyda Azzam)
    • 15:00-15:30 Getting Active Again (Assistant Physiotherapy Practitioner, Carrie Beasley)

    15:30-16:00  REFRESHMENT BREAK

    16:00-17:00  Health and Fitness Session

    • 16:00-17:00  All-ability Beginner’s Seated and Unseated yoga (Lizzie Dunn)