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    Holiday Inn

    25 Aytoun St, Manchester M1 3AE

    10:00 – 17:30

     

PROGRAMME

  • COVID-19:  due to the vulnerability of many of those attending this event, we ask attendees not attend if you have any covid-19 symptoms, or if you have tested positive for covid-19.

     

    This programme is draft and subject to change without notice

     

    09:30-10:00 REGISTRATION AND REFRESHMENTS
    10:00-10:55  INTRODUCTIONS AND HOUSEKEEPING
    10:00-10:30  Welcome and Past & Future Activities Overview (Jo Grey, AMEND CEO)
    10:30-12:30  DISEASE-SPECIFIC Q&A SESSIONS
    MEN1 Q&A

    Chair:

    Gill Masters

    Medical Expert: Prof John Newell-Price (Sheffield)

     

    		 MEN2 & 3 Q&A (inc. Sporadic MTC)

    Chair:

    Jo Grey

    Medical Expert:  Dr Safwaan Adam (Manchester)

    		 PHAEO PARA (PPGL) SYNDROMES Q&A

    Chair:

    TBC

    Medical Expert: Dr John Ayuk (Birmingham)

    		 Adrenocortical Cancer Q&A

    Chairs:

    Jennifer & Paul Rayner

    Medical Expert: Dr Yasir Elhassan (Birmingham)

     

    		 ReConnect4 Hang-out Zone for Young Adults

    Facilitator: Becca Hargreaves, Rareminds

    Ages 13-18 only

     

    		    
    12:30-14:00 LUNCHTIME
    14:00-15:30  LIVING WITH RARE ENDOCRINE DISEASES
    14:00-15:30  Adolescents and Young Adults (ages 13-25) – Sorting Hat Q&A with Rareminds Counsellor, Becca Hargreaves
    14:30-15:30  Adults (ages 25 and over) – sorting Hat Q&A with Rareminds Counsellor Kym Winter
    15:30-16:00 REFRESHMENT BREAK 
    16:00-17:30  HEALTH AND FITNESS FOCUS 
    16:00-16:45  TBC
    16:45-17:30  All-ability Beginners’ Seated and Unseated Yoga (with Victor Stevens from The Yoga Family)
    17:30-18:30 DRINKS RECEPTION (own cost)

     

Book your ticket(s) now

  • HOTELS:

    Please click on the hotel links below to view these offers.  These prices were correct as of 21st March, and may be subject to change.

     

    Holiday Inn Manchester City Centre (Information Day Venue)

    AMEND have a number of rooms secured at the following reduced rates:

    Friday 6th May – £109 Bed and Breakfast per room (single occupancy)

    Saturday 7th May – £109 Bed and Breakfast per room (single occupancy)

    Please note: there is an additional charge for the 2nd guests breakfast if a double occupancy room is required.

    Please call the in house reservations team on 0161 694 2401 to book these rooms at these rates and quote ‘AMEND’.

    Motel One – Manchester Piccadilly

    Minimum 2 night stay. 6th -7th May – £248

    Premier Inn – Manchester City Piccadilly

    Friday 5th May – Price from £75 not inc breakfast

    Saturday 6th May – Price from £135 not inc breakfast

    Mercure Manchester Piccadilly

    Friday 5th May – Price from £99 not inc breakfast

    Saturday 6th May – Price from £179 not inc breakfast

    Abode Manchester

    Friday 5th May – Price from £104 not inc breakfast

    Saturday 6th May – Price from £204 not inc breakfast

    Malmaison Manchester

    Friday 5th May – Price from £102 not inc breakfast

    Saturday 6th May – Price from £199 not inc breakfast

    Travelodge Manchester Piccadilly

    Friday 5th May – Price from £84.99 not inc breakfast

    Saturday 6th May – Price from £175.99 not inc breakfast