• Novotel Hotel, Paddington, London

    3 Kingdom Street, Sheldon Square, London W2 6BD


    We return to London for the 2020 Annual Patient Information Day.  This free event is open to all those affected by MEN or SDH syndromes, as well as sporadic MTC and ACC.

    Expect information sessions relevant to each disease with medical experts, as well as plenty of time for networking with your fellow patients for peer support.  As usual, a creche will be available for children under 11 years of age to give parents peace of mind.

    Draft Programme (subject to change)

    09:30-10:00         Arrival and refreshments

    10:00-10:30         Overview of AMEND’s 2019 and future activities (AMEND CEO, Jo Grey)

    10:30-12:30         Disease-specific Q&A sessions

    • MEN1 – hosted by Professor Karim Meeran, Imperial College, London
    • MEN2A –  host tbc
    • MEN2B – host tbc
    • ACC – hosted by Professor Wiebke Arlt, University Hospitals, Birmingham
    • SDH Syndromes – host tbc
    • MTC – host tbc


    12:30-14:00         Lunch break (buffet lunch with communal tables)

    14:00-14:30         Endocrine tumours research update (speaker tbc)

    14:30-15:30         Disease-specific focus groups

    15:30-16:00         Refreshment break

    15:30-16:00         Diet in endocrine disease (speaker tbc)

    16:00-17:00         Relaxation (with Peter Berry) or Movement Session (with Pauline Cockburn)

    17:15-17:30          AMEND Annual General Meeting (members only)

    You can already book your free tickets via the button below.

    We hope to see you there!

Thank you to our Sponsors


    This event is supported by an unrestricted patient group grant from ITM Solucin GmbH