• We are working on further resources for this section of the website, so do check back from time to time.   If you would be interested in helping AMEND to develop these, then please do contact AMEND CEO, Jo Grey.

    Adolescence can be difficult time, not least when you are also juggling a rare disease alongside everything else.  If you’re going to be moving hospitals, going to university, heading off for an adventure in the big wide world, or simply trying to get your head around friendships and relationships, then hopefully there’s something for you below.

    If there are any other topics that you’d like us to tackle, then please do let us know!

  • A great example of a short video from two of our young members