• We are very grateful to everyone who has gifted us their My Story.  The following stories give you a flavour of the variety of journeys with MEN2B that different people experience.  We hope you find them interesting, useful and maybe even inspiring.  Writing about your experiences of living with a rare disease can be cathartic.  If you would like to write about your journey, please download our template and send it to Jo Grey at the AMEND HQ.  Thank you

  • Jess