Although many people live relatively normal lives, being diagnosed and living with a rare genetic condition can be difficult at times. AMEND is here to help support you through our private Facebook Groups, YouTube videos, events and professional and free Counselling Service. Join our exclusive and private Facebook Group for young people, follow us on Twitter, check out our videos on our YouTube Channel, or come along to one of our events with special content just for young people. If you find you’re really struggling, our Counselling Service is free and fast to access. Do you have a good idea to help support other young people? Just let us know!
Learn more about our social media support opportunities
Learn more about how other young people are living with their disorder (coming soon!)